From Whence 
We Came 

NHL Patient support groups formed spontaneously on the Internet

* Tragically, Janet Nightingale recently lost her fight with Lymphoma. She was an extraordinary bright star in our online community. She will be missed and remembered.

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As this site grows, the need to check links, grammar, remove the outdated, change emphasis ... expands as well.  You can help by notifying me by email.

I will be sure to acknowledge your contribution.

Thank you!

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Patient support groups have formed spontaneously on the Internet. It did not take long to recognize the need to organize the information that flows continuously into these e-mail systems. To answer this need, we first created Lymphoma Information at Datafork. It allowed our group to post answers to frequently asked questions to a central location.   

With a website in place, it became easier to provide answers to frequently asked questions.  for example:

"You can find information about PET scans on www.abc,." 

Now we can also refine and verify the answers; provide supporting references, add related topics and links to other resources.  From the website, it's easier to organize and present the issues, advocate for change, . . . improve the system?  Well that still remains to be seen. : - )

Acknowledgments: 

I thank our impromptu internet family for providing near continuous help, inspiration, and education. Particularly, I thank:

. . . and countless others for their support and inspiration.  

 Susan Gallant - Travel for Treatment