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Patients Against Lymphoma

 

Advocacy > Advocacy Programs

Last update: 12/21/2015

Programs that empower and educate patient advocates:

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Director's Consumer Liaison Group  NCI
The Committee shall advise and make recommendations to the Director, NCI, from the perspective and viewpoint of cancer consumer advocates on a wide variety of issues, programs and research priorities. The Committee shall serve as a channel for consumer advocates to voice their views and concerns.
  

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FDA Advisory Committee  - Patient Representative program   fda 

Comment on Proposed Regulations and Submit Petitions   www.fda.gov/
any citizen may submit a petition on any matter of concern under the jurisdiction of FDA
 

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IRB - Human Subject Protections  OHRB
Participating in IRBs will let you participate in trial design in order to protect trial subjects and maximize participation as well. 
 
  

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NCI program: CARRA  cancer.gov
As a CARRA member, you may be selected to participate in a CARRA activity. Your participation is important because you bring the unique perspective of someone affected by cancer and represent others also affected by the disease.
  

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Consumer Representative in Advisory Committees  FDA
The Food and Drug Administration seeks input from consumers on medical and scientific issues. A key method of ensuring that FDA gets consumers' points of view is by including consumer representatives on Agency advisory committees.
 

 
Disclaimer:  The information on Lymphomation.org is not intended to be a substitute for 
professional medical advice or to replace your relationship with a physician.
For all medical concerns,  you should always consult your doctor. 
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