Ask Question
Sign Guest book

 
About Lymphoma
| Advocacy & Art | CAM & Life Style | Clinical trials | Doctors & Centers  | Guidelines  at  Diagnosis | How  to   Help  | Research | Side Effects  | Support | Symptoms  | Tests | Treatments


WebCasts

Advocacy programs

  

Tools | Clinical Trial Design | Combining Forces | Commentary | Famous People with Lymphoma
FDA | Money | Lymphoma Statistics | Advocacy Programs | Progress Review Group | SV40 Updates

Advocacy > Advocacy Programs

Last update: 02/08/2008

Programs that empower and educate patient advocates:

bullet

Director's Consumer Liaison Group  NCI
The Committee shall advise and make recommendations to the Director, NCI, from the perspective and viewpoint of cancer consumer advocates on a wide variety of issues, programs and research priorities. The Committee shall serve as a channel for consumer advocates to voice their views and concerns.
  

bullet

FDA Advisory Committee News and Information  fdaadvisorycommittee.com 
 

bullet

IRB - Human Subject Protections  OHRB
Participating in IRBs will let you participate in trial design in order to protect trial subjects and maximize participation as well. 
 
  

bullet

NCI program: CARRA  cancer.gov
As a CARRA member, you may be selected to participate in a CARRA activity. Your participation is important because you bring the unique perspective of someone affected by cancer and represent others also affected by the disease.
  

bullet

Patient Consultant to the FDA  FDA
The Food and Drug Administration (FDA) is initiating a new program, the Cancer Drug Development Program to incorporate the perspective of patient advocates into the drug development process. This program will provide cancer patient advocates an opportunity to participate in the FDA drug review regulatory process.
  

bullet

Patient Representative in Advisory Committees  FDA
The Food and Drug Administration seeks input from consumers on medical and scientific issues. A key method of ensuring that FDA gets consumers' points of view is by including consumer representatives on Agency advisory committees.
 

 
Disclaimer:  The information presented on Lymphomation.org is not intended to be a substitute for 
professional medical advice or to replace your relationship with a physician.
For all medical concerns,  you should always consult your doctor. 
Patients Against Lymphoma, Copyright © 2004,  All Rights Reserved.