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Patients Against Lymphoma
Support > Patient-to-Patient > Clinical Trial Survey
... for patients who have NOT yet considered clinical trials
Last update: 10/15/2010
If you have considered one or more clinical trials, do not complete this survey. Click here instead.
After you complete the survey you will see a list of what you selected. When you return to this form, you are done.
b) Age at diagnosis: Select child 1-10 teen 11-19 adult 20-29 adult 30-39 adult 40-49 adult 50-59 adult 60-69 adult 70-79 adult 80-89 adult 90+ (approximate) c) Time since my diagnosis: Select 01 months or less 02 - 07 months 07 - 11 months 12 - 17 months 17 - 23 months 2 years 3 years 4 years 5 years 6 years 7 years 8 years 9 years 10 years 11 years 12 years 13 years 14 years 15 years 16 years 17 years 18 years 19 years 20 years 21 years or more (approximate) d) The current grade * of the lymphoma (choose one): unknown aggressive/intermediate (high grade) indolent or slow growing (low grade) indolent, transformed to aggressive * Grade refers to the expected growth rate of the lymphoma. Go to Next Question group e) Cell type* of the lymphoma (choose one) unknown CLL/SLL Diffuse Large B-cell Follicular (b-cell) sometimes called Center Cell MALT or Marginal Zone (b-cell) (MALT stands for mucosa-associated lymphoid tissue) Mantle Cell (b-cell) Waldenstrom's (b-cell) T-cell (any type) Hodgkins Other (Other, specified) * The cell type of the lymphoma is described on the pathology report. Treatment approach can vary significantly based on cell type. If you are not sure, choose Unknown. f) Your email* address * Required so we can check for duplicate entries. This information will not be published, however. When duplicates emails are found, we will retain only the last survey for the email) Go to Next Question group
* A treatment course could be a single agent, combination or sequential therapy. It could include maintenance therapy, such as Rituxan given after chemotherapy on a regular basis.
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* By "interest level" we mean an expectation that clinical trials may provide access to therapies that can be superior to approved therapies and provide clinical benefit. Go to Next Question group
* Standard medicines are protocols that have been tested and approved. * Tests and procedures - such as biopsies, blood tests, ct scans * Remission - no symptoms, and no evidence of disease by imaging * Stable - not progressing or causing symptoms. * Eligible - requirements for participation, such as normal blood counts * Alternative medicine - non-mainstream substitutes for treatment that have not been proven safe and effective in clinical trials. b) Please select the most important reason (listed above) for not yet considering clinical trials: Select My lymphoma has been stable without treatment I'm in remission I'm in treatment or have recently completed treatment I have greater confidence in standard therapies to be effective My regular oncologist has not mentioned studies I'm concerned about risks - studies are not as safe as standard medicine I'm confused about which study is most appropriate I have concerns about excessive tests and procedures I expect I would not be eligible I expect insurance would not cover expenses I feel that alternative medicine can control the disease c) Other reason you have not yet considered a clinical trial? (optional text)
Click Submit to complete the survey. Thank you for participating!