I hope you don't mind me chiming
in....but I saw your message and thought I would add my experience
just as a reference
My MALT was also localized to only my left eye. All other tests (CT,
BMB, PET came back fine) Mine extended back over the lateral rectus
muscle.
I had several opinions one with a lymphoma specialist the other with
an ocular oncologist--and 2 radiation specialists...both agreed
treatment should be radiation to the orbit. In reading the report
because the lesion involved the lateral rectus muscle (the entire
orbit was at risk) A total dose of 34.2 was delivered---in 1.8 Gy
daily fractions (and would remain below
tolerance of the optic nerve and majority of ocular structures.) It
was given for a total of 19 fractions. (One less than the 20
prescribed) I had mine Mon-Fri..... My ocular oncologist (from Wills
Eye Hospital in Philly) attends conferences all over....(Jerry &
Carol Shields travel and lecture worldwide)
I will say going into this treatment I did not know what to expect.
For me I tolerated the radiation far better than I imagined I would.
The doctor mentioned to keep the area moist. I remember using
Biadine cream and Aquaphor ointment which worked well. The eye can
get a gritty feeling and tear, and the area surrounding eye area can
get red like a sunburn. Everyone tolerates treatment
differently--mine was not in the lacrimal gland so I can't say
exactly how that would feel.
I wish you all the best in finding the treatment that works for your
husband...Feel free to ask me any questions
Maureen :)
