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Communications - KevinMD: How to discuss online health information with your physician
"Who is writing the article, and what are their credentials? Who is paying for the study to be completed? ... Only then will the Google stack be recognized and used in a helpful, not counterproductive, fashion.
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Support - NYTimes: Learning From Other Patients
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NYTimes: Weighing the Chances at Life’s End
We talk frequently here about medical workers subjecting frail, sick elders to aggressive care. But the reverse situation also applies: Doctors may explain that further interventions are futile, that patients won’t recover, while families push for every possible treatment. Why is that?
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NYTimes: What Doctors and Patients Don’t Want to Talk About
“despite the apparent widespread embrace of honesty and openness, both doctors and patients have remained resistant to full transparency — especially when it comes to discussions about costs and the inevitable need to allocate limited health care resources.”
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MDA: Ask The Right Questions: Get The Most Out of Your Oncology Appointments
Nice advice here from an MD survivor, including what NOT to ask and WHY.
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News Medical: Study emphasizes importance of quality-of-life discussions for critically ill patients
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U Pitt: Family members of ICU patients too optimistic when faced with grim prognoses
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Sciencebased Medicine: When to call the doctor
“A minor symptom can escalate into the perception of a serious problem with the collusion of a provider. An overzealous doctor may embark on a cascade of unnecessary tests that not only worry the patient but can lead to physical harm from biopsies or exploratory surgery.”
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Communications - MSNBC: Most docs tell white lies, study finds
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Psych Central: Tips for Telling Others About Your Partner’s Illness
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NYTimes: When Doctors Don’t Tell the Truth
“Fortunately, my dire prediction proved incorrect. And while I never questioned the importance of a doctor’s honesty, every year that couple and their son returned, I wondered again if my devotion to this professional ideal had come at a significant cost: their hope.”
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Living - Psychology Today: Love and Parenting, and Cancer
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Living - KevinMD.com: Cancer pain is often undertreated
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Living - NYT: Life, Interrupted: Facing Cancer in Your 20s
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Living - KevinMD: To survive with cancer, you need to accept that you are going to die
Historicglass writes: “ True, how very true. A lot of us here have incurable cancer, we have to live with our mortality every day, in a way it is a blessing, we focus on what is important!
Defens writes: “Although the title seems a bit off-putting and fatalistic to me, the lesson is clear - do you best to spend your time living, and not getting caught up in the process of dying.”
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Living - KevinMD: When words are worthless in the cancer clinic
Heidi writes: “That was a sad but beautiful story. The man's quality of life was greatly improved by the surgery and he got his wish to go back to his cabin and fish. You have to wonder how many doctors would have gone that extra mile to line up a surgeon on a holiday weekend.
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Medscape: Mindfulness Training Can Improve Symptoms, Mood After HSCT
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ASCO: Cancer Survivorship - Free Booklet
“Your life may be forever changed by cancer. Some people talk about appreciating life more and gaining a greater acceptance of self after their cancer treatment ends. Others become anxious about their health and unsure of how to cope with life’s demands. In some ways, moving from the period of “active treatment” into survivorship is one of the most complex aspects of the cancer experience because it is different for every person."
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Depression during Cancer Treatment http://bit.ly/otRJjP
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5 rules for living well with a chronic illness http://bit.ly/k6uect
"When someone outside the circle asks you the same question, lie. Say, “I’m fine!” and change the subject. Too often they can’t handle the truth and they suck any energy you have taking care of them. If someone asks if they can help, say yes. Accepting help is a gift to them. Trust that someday you will be on the giving end."
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Psych Central: 3 Practices to Calm An Anxious Mind
such as: “paying attention to each moment and to your breathing as though you’re doing it for the first time, so that you’re curious and welcoming.”
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Slate: Now what? Life after cancer treatment I'm readying to end a protocol that saved my life -- so why am I so scared?
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Psych Central: Tips to cope with stress
Such as: “Worry is when you take preparation to an extreme and begin trying to find every possible outcome that you can have a plan for. You never allow yourself to recognize that there are times when we do not have the ability to control everything and therefore it cannot be prepared for.”
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Psych Central: 9 Ways to Take Care of Yourself When You Have Depression
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MDA: Letting People Know (you have cancer)
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ESMO: Anxiety and Depression in Cancer patients
An excellent presentation on anxiety and depression in cancer patients. Audio would not load, but can go through slides. Talks about cancers that can present with depression (lymphoma is one of them) and medications that can cause symptoms
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Hope - Harpham, Wendy S. MD - Oncology Times: VIEW FROM THE OTHER SIDE OF THE STETHOSCOPE: Real Good News
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Living - Oncology Times: View From The Other Side Of The Stethoscope: Managing Uncertainty (Part 4): Patient Handout
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Living - PubMed: Employment and Insurance in Survivors of Hodgkin Lymphoma and Their Siblings: A Questionnaire Study.
"survivors may face greater challenges in obtaining employment and insurance. Late effects from treatment, including permanent cosmetic changes, may contribute to these differences."
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Living - KevinMD: How to get ready for death
Written by a hospital chaplain. Step number one: "Start early. Begin preparing when you're young and healthy and death is, presumably, a long way off. Don't wait until you're old and sick and death is just around the corner. Then it may be too late.
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Living - Medical News Today: What Are The Symptoms Of Depression?
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Living - Psych Central: Tips to cope with stress
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Living - Eurekalert.org: Nurses key in helping new cancer patients overcome fears Diagnosis brings high levels of stress, raises existential issues
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Living - KevinMD.com: How cancer can strengthen your relationship
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Living - Weill-Cornell: Lymphoma in the news: Exercise after completion of cancer treatment improves quality of life
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Living - WSJ: Why Doctors Die Differently: Careers in medicine have taught them the limits of treatment and the need to plan for the end
“Doctors don't want to die any more than anyone else does. But they usually have talked about the limits of modern medicine with their families. They want to make sure that, when the time comes, no heroic measures are taken. During their last moments, they know, for instance…”
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Living - Medical News Today: Depressed Cancer Patients Might Have More Physical Symptoms
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Living - Psych Central:
3 Practices to Calm An Anxious Mind
such as: “paying attention to each moment and to your breathing as though you’re doing it for the first time, so that you’re curious and welcoming.”
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Living - Slate: Now what? Life after cancer treatment I'm readying to end a protocol that saved my life -- so why am I so scared?
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Living - Psych Central: Tips to cope with stress
Such as: “Worry is when you take preparation to an extreme and begin trying to find every possible outcome that you can have a plan for. You never allow yourself to recognize that there are times when we do not have the ability to control everything and therefore it cannot be prepared for.”
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