Support & Survivorship

Last update: 06/18/2013

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TOPICS
Alerts / Keeping Safe | Psychosocial | Doctors | Financial and Career |  Insurance Help | Drugs |
Immunization Guide | Treatment Support & Tips  | Patient-to-Patient (right column)

In the News:

	Onc Times: Fatigue: The Forgotten Symptom? http://bit.ly/X4U4SN
	Healthcare.gov: State by state health insurance options for people with pre-existing conditions
	Cancernet: Cancer Rehabilitation

Alerts and Keeping Safe

	Guide on Counterfeit Drugs
	Keeping Safe minimize your risk from medical errors
	Supplement Alerts

Psychosocial and Physical Effects

	Living Well with Lymphoma Dealing with Anxiety and Depression (Improving Quality of Life)
	Books that provide guidance
	Caregiver Stress & Caregiver Tips Talking with your child about your cancer
	Complementary practices Exercise & Diet  | Yoga
	Encouragement
	Fatigue
	Fertility / sexual support and reports
	Health Care Proxy
	Pain Management
	Palliative Care / Hospice
	Parents:  Talking with your child about your cancer
	Patient Stories
	Sexual / Fertility / Reproductive side effects
	Support Groups  | "Buddies" Programs
	Support Organizations
	Survivorship: Dr. Wendy Harpham

Doctors

	Communicating with your doctor
	Locating Doctors  & Cancer Centers
	Preparing for doctor visits | Bring List PDF
	Questions for your doctor - checklist
	NEW Survivorship Care Plan - do you have one?
	Your Medical Rights
	Your Test Results and HIPAA - rules and tips

Drug resources
 

Drug Payment Support

Financial, Career, Insurance & Legal support

	Careers and workplace discrimination
	Financial support Drug Payment Support Insurance   Help with drug payment Family and Medical Leave Act (fixed) New Veteran resources

	Insurance What if I have no insurance? Healthcare.gov - State by state health insurance options for people with pre-existing conditions
	The Legal Clinic for the Disabled
	Managed Care
	Travel help

Immunization Guide
 

Re-immunization after SCT

Treatment Support
 

	Asking questions, with checklists
	Monitoring Indolent Lymphoma
	Recovery from Treatment and Managing the Late Effects
	Risks and Benefits / Secondary Risks
	To "port or not to port" and other drug administration questions
	Patient Stories
	Sexual / reproductive Issues
	Travel and Lodging for Treatment
	Treatment Support and Tips
	Diet for Immune suppressed
	Diet to control nausea
	Treatment decisions - factors that can influence treatment goal, type, and timing and            Considerations at relapse
	Treatment Tips Treatment Support page for Blood Draws and IVs for CHOP+R Treatment for Rituxan ... a checklist Treatment diary

Patient-to-Patient Support
& Patient Stories

Art 
Images and poems created by patients and caregivers that portray the experience of living with lymphoma.  

Books 
Patient-recommended books on living with lymphoma and its treatment 

Caregiver Stress
Help with identifying and relieving caregiver stress.

Caregiver Tips

"Buddies" Programs - peer-to-peer support with guidance on 
How to Help a Friend

Doctor-Patient Relationships 
Guidance on how to communicate with your doctor, and how to create a support team to optimize your care. 

Encouragement
Reasons to be optimistic; guidance on the shock of diagnosis

Guidelines at Diagnosis
Checklist to help when you are first diagnosed. 

Life After Cancer Journal  

Create Your free Lotsa Helping Hands community

Patient Stories
Inspirational, patient-to-patient guidance; Memorials

Printable Guides & Tools  
Free printable brochures, checklists, spreadsheet to help patients obtain optimal care. 

Support Groups - This page lists a variety of online support groups. It also allows you to change some subscription settings, such as no-email or daily digest. 

Tips for Coping with CHOP+R treatment

Tips for "Skick"y Situations Blood Draws and IVs: Tips for Minimizing Anxiety and Pain
 

The patient-to-patient support section relies on the input of lay persons, primarily. We seek reputable sources of information.

As with all material on this site, please consider it a starting point for discussions with your physician.  We welcome input from patients, caregivers and medical professionals. 

- Karl Schwartz