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> Doctors and Centers
Last update:
05/04/2008
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Patient-recommended
Lymphoma Oncologists by State | Integrative
Pathology
- getting a second evaluation | Research
News |
Find Doctor/
Second Opinion
Online
Does
the oncologist you are considering or consulting:
* have experience in the treatment of your specific cancer?
* conduct clinical trials (is a clinical trial investigator)?
* offer radioimmunotherapy (nuclear medicine) as a treatment option?
* actively participate in professional organizations
dedicated to continuing education and professional development in
the field?
* show compassion and the ability to communicate and partner
with you?
On Optimizing Office Visits:
This is a reminder that our physicians have many patients and the day is short - and that your records are probably
stored in an impenetrable stack, with but one piece of the picture visible to the eye. So arranged, trends can be impossible to see. And it could be that if you do not connect the dots that nobody will.
Think like a corporation: Produce the reports - the chronology of tests, treatments, lab results, and outcomes that show the trends.
Prepare your lists of questions, medications, events, and allergies. Provide a summary of your goals. Provide information on the trials you think worth discussing.
And sometimes just in the making of
your report and questions, new ideas will arise.
Be concise. Avoid handing your doctor a 20 page report - adding one stack to another.
Be respectful of your doctor's time. Ask if it's a good time to ask questions ...
To assist you in your mission, we provide patient support tools here
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Getting an accurate diagnosis
and finding a cancer expert can be be critical to receiving optimal care.
We highly recommend the Cancernet
service for Finding
Board-Certified Oncologists, and the
LLS information about Choosing a Specialist
Finding
and Choosing a Qualified Doctor
To
locate Board-Certified oncologists in your state:
* Click Cancer.net
From Cancernet:
* Select City and State,
* Check category (Oncology, Oncology/Hematology),
* Click GO.
 | New:
Compare health care providers ucomparehealthcare.com
Disclaimer: We cannot verify the criteria used to determine
ratings.
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| Search
the Cancer.org Hospital Locator
A database of more than 1,400 cancer hospitals that meet the
guidelines and reporting standards of the American College of
Surgeons' Commission on Cancer (CoC).
|
| Find a doctor who specializes in neuropathy
neuropathymd.org
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| Choosing a Specialist LLS
This link provides valuable information about the qualities
that make an excellent doctor.
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| Resources for Finding and Evaluating Doctors
and Centers:
(Provided by Carol Lee)
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| Leads on Locating Specialists
 | Scientific
Advisory board LRF
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| Stem cell transplant advisory
board BMT
Info
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| SPOREs
for Lymphoma - Specialized Programs of Research Excellence PAL
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| See patient-recommended doctors Below
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Communicating with your
doctor
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Discussing
CAM with your doctor scienceblogs.com:80/terrasig |
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Doctor to
patient relationship PAL
Guidance on how
to communicate with your doctor, and how to create a support team
to optimize your care. |
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Questions for your doctor
a categorized
checklist
PAL | PDF
brochure
Questions related to treatment, side effects, and general
questions.
Questions for Doctors - A Checklist PDF
(printable brochure) |
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When
should I consider a clinical trial? PDF
brochure
Questions for your doctor. |
| A
checklist for doctor visits PAL |
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'The Smart Patient:
How to Get the Best Care NPR.org
"From how they talk to doctors to what they read, patients
can strongly influence the level of care they receive."
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Treatment Diary - includes common
questions to
ask your doctor PAL |
 TOPIC
SEARCH:
Patient/doctor
relationship - Medscape | Nurses
perspectives - PubMed |
Shared
decision-making - PubMed | Web
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Cancer Centers |
Cancer Centers
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page moved
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Patient
Recommended Lymphoma Specialists |
Patient-recommended
oncologists
The criteria for this list
is that your oncologist is respected by his or her peers, and has demonstrated
a willingness to be a partner in your care: that
he or she communicates the pros and cons of both standard and investigational
treatments effectively - mindful of how they relate to the
true risks of the disease, the clinical details, and your
treatment priorities.
We reserve the right to exclude referrals
when the physician promotes therapies or diagnostics that have
not been validated by clinical studies.
NOTE: Because we cannot verify all the
recommendation received, please consider this list to be only a starting
point in your search.
Send your referral in
this format:
STATE, CITY, DR (PI), CENTER, CONTACT INFO (date added)
Send an email referral by
clicking Here
PI means that this physician also conducts
lymphoma-specific clinical research.
The information
presented on Lymphomation.org is not intended to be a substitute for
professional medical advice or to replace your relationship with a physician.
For all medical concerns, you should always consult your doctor. Patients Against Lymphoma, Copyright ©
2004,
All Rights Reserved.
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These physicians,
listed in State/Country order, have made at least one patient
very happy with the services they provide. Doctors marked in blue
conduct clinical research and may have access to and information about
emerging therapies. PI means that this physician also conducts
lymphoma-specific clinical research.
LIMITATIONS: The list isn't comprehensive because it's based on
submission by patients, and so excellent oncologists may not be included
simply because patients haven't yet taken the time to tell us.
The list can't be considered completely reliable either because the quality of
individual consults are somewhat dependent on our skills too: the questions
we ask, our communication skills, and also luck - such as when the doctor
has lots of time that day. ... That is to say: results will vary
| Canada, B.C., Dr. Joseph M. Connors (PI), B.C. Cancer Agency, Vancouver, (604) 877-6000 Local
2746....
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| Canada, Dr.
Pierre Laneuville is an Associate Professor in the Department of
Medicine and Oncology at McGill University
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| Canada, Dr. Jean Roy (who practices out of hospital
Maisonneuve) jean.roy@ssss.gouv.qc.ca
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| CA - Stanford, Dr.
Sandra Horning - Stanford Cancer Center, Lymphoma Clinic, 875
Blake Wilbur Dr., Clinic C , (650) 725-6456 | Web
Profile
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| CA - Campbell, 95008, Martin Rubenstein M.D.,
F.A.C.P. (PI), Southbay Oncology Hematology Partners, 50 E. Hamilton Ave. Ste. 200,
(408) 376-2300
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| CA, La Jolla, Peter R. Holman, M.D., (PI); Hematology/Oncology, Cancer Center & Department of Medicine, University of California, San Diego, (858) 657-6790
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| CA - Stanford, Dr.
Ronald Levy - Stanford Cancer Center, Lymphoma Clinic, 875
Blake Wilbur Dr., Clinic C, (650) 723-7621 | Web
Profile
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| CA, San Francisco, Dr. Karin Gaensler, Division of Hematology/Oncology, 400 Parnassus Avenue Suite A502
San Francisco, Ca. 94143-0324, Tel: (415) 353-2421, Fax: (415)
353-2467
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| CA, Whittier, Dr. Glenn Tisman, Hematology/Oncology, (562)
789-8822
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| CO, Denver Dr. Jeffrey
Matous, Rocky Mountain Cancer Centers 1800 Williams Street, Suite 200 Denver, CO 80218
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| CT - Francine M.
Foss, MD - Yale Cancer Center, New Haven
Presented at Clinical Applications Conference; Expert in CTCL -
Cutaneous T-cell Lymphomas | Web
Profile
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| DC - Dr. Cheson is Professor of Medicine, Head of Hematology, and Director
of Hematology Research, Georgetown University Medical Center - Lombardi Comprehensive Cancer Center, 3800 Reservoir Road, NW Washington, DC 20007, (202) 444-2223
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| FL, Ft. Lauderdale, Dr. Mayda Arias, North Broward Medical
Center Cancer Center in Pompano Beach, (954) 786-6460
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| IA, Iowa City, Dr. Brian Link (PI); University of Iowa Hospitals and
Clinics,
(319) 356-8508
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| IL, Chicago, Dr. Leo
Gordon, Northwestern University, The
Feinberg School of Medicine, (312) 695-4546
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| IL, Chicago, Dr. Gregory (PI), The Rush Cancer Institute
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| IL, Chicago, Dr. Steven Rosen, Director Lurie Cancer Center of Northwestern University Medical Center,
(312) 908-5250
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| IL, Chicago, Stephanie Ann Gregory, M.D. Rush Medical
Center
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| IN, South Bend, Dr. Rafat Ansari at the Michiana Hematologist/Oncologist Center, in South Bend,
(574) 234-5123
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| MA, Boston, Dr. Arnold S. Freedman, Dana Farber Cancer
Institute 44 Binney Street Boston, MA, 02115 Mailstop:
Dana 521
Phone: (617) 632-3441 Fax: (617) 632-5235 arnold_freedman@dfci.harvard.edu
| Web
Profile
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| MI, Ann Arbor, Dr.
Mark Kaminski; University Mi Comprehnsv Cancr
734-647-8901
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| MN, Minneapolis, Dr. Bruce Peterson (PI); University of Minnesota
Hospitals,
(612) 625-5411
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| MN, Rochester, Dr. Thomas Haberman (PI); Mayo
Clinic,
(507) 284-2511
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| MN, Rochester, Dr. Stephen Ansell (PI); Mayo
Clinic,
(507) 284-2511
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| MN, Rochester, Dr. David Inwards (PI); Mayo
Clinic,
(507) 284-2511
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| MN, Rochester, Dr. Thomas E. Witzig (PI) Mayo Clinic,
(507) 284-2511
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| MO, Joplin, Dr. Tracy L. Coe, MD, Hematology/Oncology. Freeman Cancer Institute 3415
Macintosh Circle Drive P.O. Box 2644, Joplin Missouri 64803-2644
(417) 782-6630 / (888) 234-3737
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| MO, St Louis, Dr. Bartlett, Nancy Lee (PI), Alvin J. Siteman Cancer Center, 4921 Parkview Place, Suite B, Floor 7, St. Louis, MO 63110 (314) 747-9281 Fax: (314) 362-1608
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| MS, Jackson, Dr Tammy Young, Oncology Associates PLLC Dr. 1815 Hospital Drive, Jackson, MS 39204 (601) 373-4421 (800) 776-2378
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| NC, Asheville, James Puckett, Asheville Hematology and Oncology Associates, P. A.,
(828) 254-8232
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| NE, Omaha, Dr. Julie Vose (PI); University of Nebraska Medical
Center,
(402) 559-3848
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| NJ, Forked River, Dr. Sara Jane McGee, Hematology Oncology Associates of Ocean County,
(609) 693-2000
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| NJ, New Brunswick, Dr. James Salwitz, Robert Wood Johnson Hospital, The Cancer Center of NJ
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| NJ, Morristown, Dr. Charles Farber, Carol G Simon
Cancer Ctr
PO Box 1089 100 Madison Ave Morristown, NJ 07962-1089
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| NY, NYC, Dr. Morton Coleman, NY Presbyterian
Hospital-Cornell Campus, (212) 517-5900
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| NY, NYC, Dr. John Leonard (PI), NY Presbyterian Hospital Weil Medical
College, (212) 746-2932
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| NY, New York, Dr. Carol Portlock (PI), Memorial Sloan-Sloan Kettering Cancer Center,
(212) 639 8109
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| NY, Rochester, Dr.
Richard I. Fisher, Wilmot Cancer Center in
Strong Memorial Hospital, (585) 275-0842
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| NY, Staten Island, Dr. Thomas Forlenza, St Vincent's, (718)
816-4949
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| OH, Columbus, Dr. Eric Kraut, Arthur James Cancer Hospital
at OSU, (614) 293-8606
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| OH, Canton, Dr. James Schmotzer
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| PA, Philadelphia,
Dr. Stephen Schuster, University of Pennsylvania, 15 Penn Tower, 3400 Spruce Street, Philadelphia, PA 19104.
(215) 614-1846
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| PA, Philadelphia, Dr. Mitchell Smith, MD (PI), Fox Chase Cancer Center,
(215) 728-2674
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| TX, Dallas, Mark Walberg, M.D., Ph.D; Oncology/Hematology, Sammons Cancer Institute, Baylor School of Medicine, (214) 370-1000.
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| TX, San Antonio, TX, Roger Lyons, M.D., F.A.C.P. (PI); Hematology/Hematologic Malignancy, Cancer Care Centers of South Texas, (210) 595-5300.
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| UK - Nottingham UK,
Andy Haynes, Consultant Haematologist, Nottingham City Hospital,
0115 9691169
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| WA - Dr.
Maloney, (PI) Univ. of Wash, (206) 288-7400 | WebProfile
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| WI, Minocqua, Dr Weiss, Lakeland Center
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Patient
Recommended Doctors who Practice Integrative Medicine |
Patient-recommended
doctors who practice Integrative Medicine
We define integrative medicine as the
integration of evidence-based complementary medical therapies
and supportive life style approaches into conventional patient care.
The primary criteria for entry into this list
is that your doctor has demonstrated an ability to be a partner in your care and that
he or she communicates your treatment options effectively and responsibly.
IMPORTANT: A responsible physician
will (1) not promote unproven alternative practice as a substitute for
proven conventional therapies; (2) will work with all your help care
providers to ensure a safe and coordinated course of care
We reserve the right to exclude referrals
when the physician promotes therapies or diagnostics that have
not been validated by clinical studies.
NOTE: Because we cannot verify all the
recommendation received, please consider this list to be only a starting
point in your search.
Send your referral in
this format:
STATE, CITY, DR, CENTER, CONTACT INFO (date added)
Send an email referral by
clicking Here
|
IMPORTANT: A responsible physician
will (1) not promote unproven alternative practice as a substitute for
proven conventional therapies; (2) will work with all your help care
providers to ensure a safe and coordinated course of care.
We reserve the right to exclude referrals
when the physician promotes therapies or diagnostics that have
not been validated by clinical studies.
NOTE: Because we cannot verify all the
recommendation received, please consider this list to be only a starting
point in your search.
| CANADA, integrative clinic -- Conventional doctors (MD's) and so-called alternative practitioners all in the same clinic. Almost all their involvement is with cancer.
www.healing.bc.ca/index2.shtml
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MD - University of Maryland Department of Complimentary
Medicine on Kernan Drive near Security (exit 17 off 695).
Dr. Sharon Montes is very
knowledgeable about all sorts of things and Dr. Maggie Covington
is great at talking things through when you have information to
sift through. They both refer to a local alternative
pharmacist, Brian Sanderoff in Owings Mills. They both do
acupuncture. source: -NHL-info
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NY, New York, Dr. Raymond Chang, Meridian Medical Group, (212) 683
1221
www.meridianmedical.org
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PA - Phoenixville & Philadelphia Offices: Ira
Cantor, MD & CAM (Complementary & Alternative Medicine):
Clinical Practice Director, Jefferson's Center for Integrative
Medicine, Thomas Jefferson University Hospital. Voice: (215)
879-5121 (Philadelphia) or (610) 933-1688 (Phoenixville)
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The information
presented on Lymphomation.org is not intended to be a substitute for
professional medical advice or to replace your relationship with a physician.
For all medical concerns, you should always consult your doctor. Patients Against Lymphoma, Copyright ©
2004-2006, All Rights Reserved.
|
|
Pathology
- Getting a second evaluation |
Pathology - getting
a second evaluation
Related Topics
Diagnosis
& Pathology
Getting a Second
Pathology Evaluation
Prognostic
indicators
Performance
Standards
Diagnostic
Tests
Disease
Direction Indicators
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An accurate diagnosis is a
key to receiving the the best treatment. We have received a good
number of reports from patients on the support lists of incorrect or missed
diagnosis. Unfortunately, it is more common than we would like to
think. Please know that your pathologist can send the slides out to the
center you indicate for a nominal fee. Insurance reimbursement
is also likely. No matter. If you can find a way to have this
done, we think you ought to.
DR LEONARD:
..." it is easy to ascertain a
pathologic second opinion — it’s simply a matter of sending the
slides; the patient doesn’t have to go. Generally, pathologists will
discuss it with you over the phone, even if you’re at another
institution. It’s not a big deal to do, and the pathology is key. I
believe a pathologic second opinion is more important than another
lymphoma subspecialist’s opinion. We re-evaluate a situation based
on our pathologist giving us information that the primary oncologist
didn’t have; therefore, I encourage patients to ascertain a
pathologic second opinion. It is a relatively easy thing to do, and it
gives the patients some reassurance.
I think all patients diagnosed with mantle cell
lymphoma should also have a second pathology opinion. That’s a hard
diagnosis to make and the implications, as far as the prognosis, are
enormous. Additionally, if the disease is acting like one type of
lymphoma, but the pathologist is telling you it’s another type of
lymphoma, maybe that’s a red flag that you ought to have it
evaluated by someone else.
Finally, gray areas exist when you see follicular
and diffuse lymphomas, and you are trying to decide if transformation
has occurred and whether you need to use an anthracycline — this is
an area in which I would encourage a second opinion from the
pathological standpoint." meettheprofessors.com
Some contacts
| Armed Forces Institute of Pathology offers expert pathology consultation for both military personnel and civilian cases
afip.org
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CA - Stanford University - Pathology Dept Stanford
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| Find Cancer Experts is a free, non-profit organization that recommends pathology experts for second opinions based on the tumor type
findcancerexperts.com
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| MA - Dana Farber (866) 408-DFCI (3324) dana-farber
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MD - NCI - Elaine S. Jaffe, M.D. cancer.gov
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NY - NY Weil Cornell Medical Center nycornell.org
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TX - MD Anderson Cancer Center - Outside consultation services
MDACC
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Criteria
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University Teaching Hospitals |
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National reputations |
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Evaluate Lymphoma specimens often |
Related articles
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Pathology the Gold Standard 
A Retrospective Analysis of Discordant  Second-Opinion
Lymphoma Pathology and Its Impact on Patient Care
The most common reasons for discordance were:
malignant non-malignant - 27 cases,
Non-Hodgkins Hodgkins - 14 cases,
lymphoma solid tumour - 18 cases and
more aggressive lymphoma less aggressive lymphoma - 47 cases.
Conclusions: (1) a discordance (one pathology finding not
matching a second) rate of 16% was similar to previous studies and
this high rate maybe improved through centralization of lymphoma
pathology; 2) these types of patients are clearly at risk for
harm, as best exemplified by patients who were felt to have a
benign pathology that was actually malignant; 3) Discordant
pathology has clear clinical implications including serial
biopsies, invasive testing and treatment delays.
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Comparison of Lymphoid Neoplasm Classification:
A Blinded Study Between a Community and an Academic Setting
Medscape (free
login req.) Am J Clin Pathol 115(5), 2001
Summary:
188 cases evaluated
167 cases were concordant (correctly diagnosed) - 88.8%
21 cases were discordant (incorrectly diagnosed) - 12.2 %
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Research News
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How Doctors Think npr.org
This question, not surprisingly, spawned others: Do different
doctors think differently? Are different forms of thinking more or
less prevalent among the different specialties? In other words, do
surgeons think differently from internists, who think differently
from pediatricians? Is there one "best" way to think, or
are there multiple, alternative styles that can reach a correct
diagnosis and choose the most effective treatment? How does a
doctor think when he is forced to improvise, when confronted with
a problem for which there is little or no precedent?
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Patient-Support Tools Medscape General Medicine [TM]
Future Directions: As limited and unsatisfying as information technology for patients has been, Blumenthal points out that the transformative potential is
great. The fundamental premise of the practice and economics of medicine is a wide asymmetry of
information.
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Study: 1 in 3 doctors hides options - Physicians withhold
information on treatment choices MSN.com
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