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> Doctors and Centers
Last update:
07/03/2009
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TOPICS
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Communicate with Doctors | Finding
Specialists | Cancer Centers
Patient-Recommended
Lymphoma Oncologists | Optimizing
Doctor Visits |
Pathology
- getting a second evaluation | Research
News |
Find Doctor/
Second Opinion
Online
Does
the oncologist you are considering or consulting:
* have experience in the treatment of your specific cancer?
* conduct clinical trials (is a clinical trial investigator)?
* offer radioimmunotherapy as a treatment option?
* actively participate in professional organizations
dedicated to continuing education and professional development in
the field?
* show compassion and the ability to communicate and partner
with you?
OTHER
TIPS:
Adapted from NYT article on how to find good medical care
nytimes.com
* Find out which doctors your closest friends really like, ...ask
trusted friends, neighbors and colleagues whom they see and feel
comfortable with."
... "I cannot emphasize enough how important it is for every
patient to have a trustworthy primary care physician who can help them
navigate our challenging, but potentially excellent, health care
system," said Dr. David T. Tayloe
* Stressed the importance of patients doing research and becoming
active part of the medical team.
... "becoming more active and knowledgeable can only improve
your care." ... "This is a shared responsibility between the
physician and the patient
for the patient's health," said Dr. Ted Epperly
* Exercise caution when going through information from commercial or
industry Web sites.
... "The Web can be a good place but also a dangerous
place," Dr. Epperly said. "It's important to find sites that
aren't biased and that provide evidence-based information."
* Ask prospective doctor questions like how much experience he or she
has with a specific condition or operation
* Make sure you feel part of a shared decision-making process and
comfortable saying how you feel, or that you don't understand or that
you respectfully disagree.
* Identifying high quality medical groups or hospitals that
"carefully monitor the quality of the clinicians affiliated with
them" and that provide "decision support, continuous quality
improvement and continuing education to keep their clinicians
functioning well."
* Contact the national professional society for that doctor's
specialty. (for lymphoma: ASCO / ASH)
... a plus: membership in the national professional society of a
specialty - often referred to as being a "fellow" in the
organization, as in Fellow of the American College of Surgeons, or
F.A.C.S. - requires board certification and a certain degree of
clinical experience.
...look for: M.D., F.A.C.P."
* Ask about participation in clinical trials.
* Caveats... bedside manner is only one of many concerns. "While
excellent quality health care integrates caring with doing the right
thing medically," she said, "a caring attitude can mask poor
quality medicine."
* Most critical - part of deciding on any physician is the quality of
the first appointment.
... arm yourself with the right questions [in writing - and a summary
of your medical issues and treatments]
* Seeking a surgical oncologist?
... ask surgeon about the number of times annually she or he
performs the specific operation needed,
... ask also about the hospitals in which those operations are
performed. (research has shown that hospital mortality rates are lower
when those operations are performed frequently.)
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Getting an
accurate diagnosis
and finding a cancer expert can be be critical to receiving optimal care.
Receiving a second opinion is also very important!
 | Dr. Rosenbaum: why are second opinions so important?
"There are actually two types of second
opinions. The first is when you want a second opinion. You’ve
already been given a diagnosis, and treatment is about to start.
The second type of second opinion is going to a tumor board. Now,
most oncologists participate in tumor boards, either locally at
their community hospital or at a university hospital where there
are radiotherapists, chemotherapists, pathologists, maybe 10 or 20
people all discussing a case, not all agreeing but coming out with
a consensus.
Source: Patient's guide to getting a second opinion Web
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Finding
and Choosing a Qualified Doctor
To
locate Board-Certified oncologists in your state:
* Click Cancer.net
From Cancernet:
* Select City and State,
* Check category (Oncology, Oncology/Hematology),
* Click GO.
Communicating with your
doctor
| See
Optimizing Consults PAL |
On Optimizing Office Visits:
Our physicians have many patients,
some with urgent needs, and that the day is short. So, it
can help to be respectful of your doctor's time. Ask if it's a good time to ask questions ...
Think like a corporation: Produce a concise executive summary that describes
your history and main objectives. Have ready the chronology of tests, treatments, lab results, and outcomes that show the trends.
Prepare in writing: your main questions, and a list of the medications, events, and
allergies you may have.
Provide a summary of your goals. Provide information on the clinical trials you think worth discussing.
And sometimes just in the making of
your report and questions, new ideas will arise.
Be concise. Avoid handing your doctor a 20 page report - adding one stack to another.
To assist you in your mission, we provide patient support tools here
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Patient-Recommended Lymphoma Specialists
Canada
| United Kingdom / Spain
United States by region: Northeast | Midwest
| South/Southeast | West/Southwest |
Criteria
for Patient-Recommended
Oncologists
The criteria for inclusion in our list is that your oncologist is respected by his or her peers, and has demonstrated
a willingness to be a partner in your care: that
he or she communicates about the full range of treatment options
(standard and investigational) - mindful of how they relate to the
true risks of the disease and the clinical details of
your case.
We reserve the right to exclude referrals
when the physician promotes unconventional therapies or
diagnostic tests that have
not been validated by clinical research.
NOTE: Because we cannot verify all the
recommendation received, please consider this list to be only a starting
point in your search.
Send your referral in
this format:
STATE, CITY,
CENTER, ADDRESS
Physician's Name, Contact
Send an email referral by
clicking Here
PI means that this physician also conducts
lymphoma-specific clinical research.
The information
presented on Lymphomation.org is not intended to be a substitute for
professional medical advice or to replace your relationship with a physician.
For all medical concerns, you should always consult your doctor. Patients Against Lymphoma, Copyright ©
2004,
All Rights Reserved.
|
LIMITATIONS: The list isn't comprehensive because it's based on
submission by patients, and so excellent oncologists may not be included
simply because patients haven't yet taken the time to tell us.
PI
= primary investigator - does clinical research.
ES = Expert Status
___________________________________________
CANADA
| Canada, Vancouver
BC Cancer Agency
BCCA, 600 West 10th Avenue,
Rm 3225
Vancouver, BC V5Z 4E6
Dr. Joseph M. Connors (PI)
(604) 877-6000
Randy Gascoyne, B.Sc.,
M.D. (PI / ES)
Specialty: biospecimen-based research
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| Canada,Montreal, Quebec,
Jewish General Hospital, Pav E, 3755 Côte-Ste-Catherine Road, Montreal, Quebec, CanadaH3T 1E2
Dr.Stephen N. Caplan, MD, FRCP 514-340-8222 ext. 8248
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| Canada
McGill University
Dr.
Pierre Laneuville (PI)
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| Canada
Maisonneuve
Dr. Jean Roy jean.roy@ssss.gouv.qc.ca
practices out of hospital)
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NORTHEAST UNITED STATES
| CT, New Haven
Yale Cancer Center, New Haven
Francine M.
Foss, MD (PI / ES)
Cutaneous T-cell Lymphomas | Web
Profile
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| MA, Boston
Dana Farber Cancer
Institute, 800- 320-0022
Dr. Arnold S. Freedman (PI / ES) (617) 632-3441 Web
Profile
Dr. Lee Nadler (PI / ES) (617) 632-3331
George Canellos (PI/ ES) , M.D. (617) 632-3470
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| DC,
Georgetown University Medical Center - Lombardi Comprehensive Cancer Center, 3800 Reservoir Road, NW Washington, DC 20007,
Head of Hematology, and Director
of Hematology Research
Dr. Cheson is Professor of Medicine (PI / ES) (202) 444-2223
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| NJ, Forked River
Hematology Oncology Associates of Ocean County
Dr. Sara Jane McGee (609) 693-2000
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| NJ, New Brunswick
Robert Wood Johnson Hospital, The Cancer Center of NJ
Dr. James Salwitz
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| NJ, Morristown
Carol G Simon
Cancer Ctr
PO Box 1089 100 Madison Ave Morristown, NJ 07962-1089
Dr. Charles Farber
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| NY, New York
Center for Lymphoma and Myeloma, Weill Cornell Medical College, The New York Presbyterian Hospital,
Dr. Richard
Furman (PI / ES) (212) 746-2932
Specialty: CLL
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| NY, New York
NY Presbyterian Hospital Weil Medical
College,
Dr. Morton Coleman (PI / ES) (212) 517-5900
Dr. John Leonard (PI / ES) (212) 746-2932
Specialty: antibody-based research
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| NY, New York,
Memorial Sloan-Sloan Kettering Cancer
Center
Dr. Carol Portlock (PI /ES)
Dr. Zelenetz (PI /ES)
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| NY, Rochester
Wilmot Cancer Center in
Strong Memorial Hospital
Dr.
Richard I. Fisher (PI /ES) , (585) 275-0842
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| NY, Staten Island
St Vincent's
Dr. Thomas Forlenza (718)
816-4949
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| PA, Philadelphia
University of Pennsylvania, 15 Penn Tower, 3400 Spruce Street, Philadelphia, PA 19104.
Dr. Stephen Schuster (PI / ES) (215) 614-1846
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| PA, Philadelphia
Hospital of the University of Pennsylvania
Abramson Cancer Center
Dr. Sunita Nasta (PI) 215-615-5858
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| PA, Philadelphia
Fox Chase Cancer Center
Dr. Mitchell Smith, MD
(PI)
(215) 728-2674
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| PA, Pittsburgh
Retina Vitreous Consultants, 412-683-5300
Dr. Louis Lobes, MD,
Specialty: orbital lymphomas
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| PA, Pittsburgh, University of Pittsburgh Physicians, Department of Neurology, Hillman Cancer Center 5115 Centre Avenue Pittsburgh, PA 15232 Phone: 412-692-4724 |
Frank Scott Lieberman, MD,
Specialty: Neuro-Oncology (PI)
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___________________________________________
WEST / SOUTHWEST UNITED STATES
| CA, Campbell
Southbay Oncology Hematology Partners,
50 E. Hamilton Ave. Ste. 200, Campbell, 95008
Martin Rubenstein M.D., F.A.C.P. (PI)
(408) 376-2300
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| CA, La Jolla
University of California, San Diego
Hematology/Oncology, Cancer Center & Department of Medicine,
Peter R. Holman, M.D., (PI) (858) 657-6790
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| CA, San Francisco,
Division of Hematology/Oncology, 400 Parnassus Avenue Suite A502 San Francisco, Ca. 94143-0324, Tel: (415) 353-2421, Fax: (415)
353-2467
Dr. Karin Gaensler
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| CA, Palo Alto
Stanford Cancer Center, Lymphoma Clinic
875
Blake Wilbur Dr., Clinic
Dr.
Ronald Levy (PI /E) (650) 723-7621 | Web
Profile
Specialty: immunotherapy-based research
Dr.
Sandra Horning (PI /E) (650) 725-6456 | Web
Profile
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| CA, Whittier,
Hematology/Oncology,
Dr. Glenn Tisman (562)
789-8822
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| CO, Denver,
Rocky Mountain Cancer Centers
1800 Williams Street, Suite 200 Denver, CO 80218
Dr. Jeffrey Matous (PI /E)
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| TX, Dallas, Oncology/Hematology, Sammons Cancer Institute,
Baylor School of Medicine
Mark Walberg, M.D., Ph.D (214) 370-1000
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| TX, San Antonio, TX, Hematology/Hematologic Malignancy, Cancer Care Centers of South Texas, (210) 595-5300.
Roger Lyons, M.D., F.A.C.P. (PI)
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| WA
Univ. of Washington
Dr.
Maloney, (PI / ES) (206) 288-7400 | WebProfile
Specialty: antibody-based research
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| WA
Seattle Cancer Care Alliance
Dr. Oliver Press (PI / ES)
(206) 288-SCCA (7222) Fax: (206) 288-1025 Web
profile
Specialty: radioimmunotherapy-based
research
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| WI
Minocqua, Lakeland Center
Dr Weiss
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___________________________________________
SOUTHEAST UNITED STATES
| FL, Ft. Lauderdale
North Broward Medical
Center Cancer Center Pompano Beach,
Dr. Mayda Arias (954) 786-6460
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| MS, Jackson
Oncology Associates PLLC Dr. 1815 Hospital Drive, Jackson, MS 39204
Dr Tammy Young (601) 373-4421 (800) 776-2378
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| NC, Asheville
Asheville Hematology and Oncology Associates, P. A
Dr. James Puckett
(828) 254-8232
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| SC, Charleston
Hollings Cancer Center
A National Cancer Institute Designated Cancer Center, 96 Jonathon Lucas St.
P.O.Box 250635, 903 CSB Charleston, SC 29425
Robert K. Stuart, MD 843-792-4271
Professor of Medicine, Hematology/Oncology
Director, Hematological Malignancies and BMT Programs
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___________________________________________
MIDWEST UNITED STATES
| IA, Iowa City, University of Iowa Hospitals and
Clinics,
Dr. Brian Link (PI / ES) (319) 356-8508
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| IL, Chicago, Northwestern University,
The
Feinberg School of Medicine,
Dr. Leo Gordon (PI / ES) (312) 695-4546
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| IL, Chicago
The Rush Cancer Institute
Dr. Gregory (PI / ES)
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| IL, Chicago
Lurie Cancer Center of Northwestern University Medical Center,
Dr. Steven Rosen
(312) 908-5250
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| IL, Chicago
M.D. Rush Medical
Center
Dr. Stephanie Ann Gregory
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| IN, South Bend
Michiana Hematologist/Oncologist Center, in South Bend,
Dr. Rafat Ansari
(574) 234-5123
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| IN, Indianapolis, Hematology-Oncology, Clarian Health-Methodist Hospital, 1704 N. Capital Ave. Indianapolis, IN 46202 (317) 962-9000
Sumeet Bhatia, MD
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| IN, Indianapolis
Associated Vitreoretinal and Uveitis Consultants, 8704 N Meridian St. Indianapolis, IN 46260
Ramana S. Moorthy, MD (317) 571-1501
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| MI, Ann Arbor,
University Michigan Comprehensive Cancer
Dr.
Mark Kaminski (PI / ES)
734-647-8901
Specialty: Radioimmunotherapy-based research
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| MN, Minneapolis, University of Minnesota
Hospitals,
(612) 625-5411
Dr. Bruce Peterson (PI)
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| MN, Rochester, Mayo
Clinic,
(507) 284-2511
Dr. Thomas Haberman (PI)
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| MN, Rochester, Mayo
Clinic,
(507) 284-2511
Dr. Stephen Ansell (PI)
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| MN, Rochester, Mayo
Clinic,
(507) 284-2511
Dr. David Inwards (PI)
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| MN, Rochester, Mayo Clinic,
(507) 284-2511
Dr. Thomas E. Witzig (PI)
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| MO, Joplin
Hematology/Oncology. Freeman Cancer Institute 3415
Macintosh Circle Drive P.O. Box 2644, Joplin Missouri 64803-2644
Dr. Tracy L. Coe, MD | (417) 782-6630 / (888) 234-3737
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| MO, St Louis
Alvin J. Siteman Cancer Center, 4921 Parkview Place, Suite B, Floor 7, St. Louis, MO 63110
Dr. Bartlett, Nancy Lee (PI)
(314) 747-9281 Fax: (314) 362-1608
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| NE, Omaha
University of Nebraska Medical Center
Dr. James
Armitage (PI / ES)
(402)-559-7290, Web
Dr. Julie Vose (PI / ES)
(402) 559-3848
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| OH, Columbus
Arthur James Cancer Hospital
at OSU
Dr. Eric Kraut (614) 293-8606
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| OH, Canton
Dr. James Schmotzer
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___________________________________________
United Kingdom / Spain
| UK
Nottingham UK, Consultant Haematologist, Nottingham City Hospital,
0115 9691169
Dr. Andy Haynes
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| Spain, Pamplona
Lab of Immunotherapy Cell Therapy Area Clínica Universitaria, University of Navarra
Avda. Pio XII, 36 31008 Pamplona, Spain
Maurizio Bendandi, M.D., Ph.D. (PI / ES)
Phone (+34 606 002 087)
Fax: +34 948 296 500 | email: mbendandi@unav.es
Specialty: immunotherapy-based research
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|
Patient
Recommended Doctors who Practice Integrative Medicine |
Patient-recommended
doctors who practice Integrative Medicine
We define integrative medicine as the
integration of evidence-based complementary medical therapies
and supportive life style approaches into conventional patient care.
The primary criteria for entry into this list
is that your doctor has demonstrated an ability to be a partner in your care and that
he or she communicates your treatment options effectively and responsibly.
IMPORTANT: A responsible physician
will (1) not promote unproven alternative practice as a substitute for
proven conventional therapies; (2) will work with all your help care
providers to ensure a safe and coordinated course of care
We reserve the right to exclude referrals
when the physician promotes therapies or diagnostics that have
not been validated by clinical studies.
NOTE: Because we cannot verify all the
recommendation received, please consider this list to be only a starting
point in your search.
Send your referral in
this format:
STATE, CITY, DR, CENTER, CONTACT INFO (date added)
Send an email referral by
clicking Here
|
IMPORTANT: A responsible physician
will (1) not promote unproven alternative practice as a substitute for
proven conventional therapies; (2) will work with all your help care
providers to ensure a safe and coordinated course of care.
We reserve the right to exclude referrals
when the physician promotes therapies or diagnostics that have
not been validated by clinical studies.
NOTE: Because we cannot verify all the
recommendation received, please consider this list to be only a starting
point in your search.
| CANADA, integrative clinic -- Conventional doctors (MD's) and so-called alternative practitioners all in the same clinic. Almost all their involvement is with cancer.
www.healing.bc.ca/index2.shtml
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MD - University of Maryland Department of Complimentary
Medicine on Kernan Drive near Security (exit 17 off 695).
Dr. Sharon Montes is very
knowledgeable about all sorts of things and Dr. Maggie Covington
is great at talking things through when you have information to
sift through. They both refer to a local alternative
pharmacist, Brian Sanderoff in Owings Mills. They both do
acupuncture. source: -NHL-info
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NY, New York, Dr. Raymond Chang, Meridian Medical Group, (212) 683
1221
www.meridianmedical.org
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PA - Phoenixville & Philadelphia Offices: Ira
Cantor, MD & CAM (Complementary & Alternative Medicine):
Clinical Practice Director, Jefferson's Center for Integrative
Medicine, Thomas Jefferson University Hospital. Voice: (215)
879-5121 (Philadelphia) or (610) 933-1688 (Phoenixville)
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The information
presented on Lymphomation.org is not intended to be a substitute for
professional medical advice or to replace your relationship with a physician.
For all medical concerns, you should always consult your doctor. Patients Against Lymphoma, Copyright ©
2004-2006, All Rights Reserved.
|
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Pathology
- Getting a second evaluation |
Pathology - getting
a second evaluation
Related Topics
Diagnosis
& Pathology
Getting a Second
Pathology Evaluation
Prognostic
indicators
Performance
Standards
Diagnostic
Tests
Disease
Direction Indicators
|
An accurate diagnosis is a
key to receiving the the best treatment. We have received a good
number of reports from patients on the support lists of incorrect or missed
diagnosis. Unfortunately, it is more common than we would like to
think. Please know that your pathologist can send the slides out to the
center you indicate for a nominal fee. Insurance reimbursement
is also likely. No matter. If you can find a way to have this
done, we think you ought to.
DR LEONARD:
..." it is easy to ascertain a
pathologic second opinion — it’s simply a matter of sending the
slides; the patient doesn’t have to go. Generally, pathologists will
discuss it with you over the phone, even if you’re at another
institution. It’s not a big deal to do, and the pathology is key. I
believe a pathologic second opinion is more important than another
lymphoma subspecialist’s opinion. We re-evaluate a situation based
on our pathologist giving us information that the primary oncologist
didn’t have; therefore, I encourage patients to ascertain a
pathologic second opinion. It is a relatively easy thing to do, and it
gives the patients some reassurance.
I think all patients diagnosed with mantle cell
lymphoma should also have a second pathology opinion. That’s a hard
diagnosis to make and the implications, as far as the prognosis, are
enormous. Additionally, if the disease is acting like one type of
lymphoma, but the pathologist is telling you it’s another type of
lymphoma, maybe that’s a red flag that you ought to have it
evaluated by someone else.
Finally, gray areas exist when you see follicular
and diffuse lymphomas, and you are trying to decide if transformation
has occurred and whether you need to use an anthracycline — this is
an area in which I would encourage a second opinion from the
pathological standpoint." meettheprofessors.com
Some contacts
| Armed Forces Institute of Pathology offers expert pathology consultation for both military personnel and civilian cases
afip.org
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CA - Stanford University - Pathology Dept Stanford
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| Find Cancer Experts is a free, non-profit organization that recommends pathology experts for second opinions based on the tumor type
findcancerexperts.com
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| MA - Dana Farber (866) 408-DFCI (3324) dana-farber
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MD - NCI - Elaine S. Jaffe, M.D. cancer.gov
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NY - NY Weil Cornell Medical Center nycornell.org
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TX - MD Anderson Cancer Center - Outside consultation services
MDACC
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Criteria
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University Teaching Hospitals |
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National reputations |
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Evaluate Lymphoma specimens often |
Related articles
|
Pathology the Gold Standard 
A Retrospective Analysis of Discordant  Second-Opinion
Lymphoma Pathology and Its Impact on Patient Care
The most common reasons for discordance were:
malignant non-malignant - 27 cases,
Non-Hodgkins Hodgkins - 14 cases,
lymphoma solid tumour - 18 cases and
more aggressive lymphoma less aggressive lymphoma - 47 cases.
Conclusions: (1) a discordance (one pathology finding not
matching a second) rate of 16% was similar to previous studies and
this high rate maybe improved through centralization of lymphoma
pathology; 2) these types of patients are clearly at risk for
harm, as best exemplified by patients who were felt to have a
benign pathology that was actually malignant; 3) Discordant
pathology has clear clinical implications including serial
biopsies, invasive testing and treatment delays.
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Comparison of Lymphoid Neoplasm Classification:
A Blinded Study Between a Community and an Academic Setting
Medscape (free
login req.) Am J Clin Pathol 115(5), 2001
Summary:
188 cases evaluated
167 cases were concordant (correctly diagnosed) - 88.8%
21 cases were discordant (incorrectly diagnosed) - 12.2 %
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Research News
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How Doctors Think npr.org
This question, not surprisingly, spawned others: Do different
doctors think differently? Are different forms of thinking more or
less prevalent among the different specialties? In other words, do
surgeons think differently from internists, who think differently
from pediatricians? Is there one "best" way to think, or
are there multiple, alternative styles that can reach a correct
diagnosis and choose the most effective treatment? How does a
doctor think when he is forced to improvise, when confronted with
a problem for which there is little or no precedent?
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Patient-Support Tools Medscape General Medicine [TM]
Future Directions: As limited and unsatisfying as information technology for patients has been, Blumenthal points out that the transformative potential is
great. The fundamental premise of the practice and economics of medicine is a wide asymmetry of
information.
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Study: 1 in 3 doctors hides options - Physicians withhold
information on treatment choices MSN.com
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