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Questions for your doctor

  

Treatment Overview / Support > Treatment Decisions > Questions for your Doctor

Last update: 04/22/2008

General Questions | Treatments & Side Effects Questions | Questions About Tests

Here we provide a checklist of questions you may refer to when it's time to talk with your doctor or nurse. 

Of course, you need not ask all these questions at one time - and, yes, we think it's good practice to be  respectful of your doctor's time. That said, be aware that your doctor cannot meet your medical needs if you don't honestly describe how you are feeling and communicate your treatment goals and concerns. 

A good doctor-patient relationship requires honesty on your part, and diplomacy.  

Diplomacy: "Is this a good time to ask questions, doctor?"  
But whatever the answer, find a way to ASK YOUR QUESTIONS. 
Prepare and provide the questions in writing so your doctor can answer when time allows.

Honesty:  Let your doctor decide if a symptom or change is important or not - communicate honestly with your doctor, the nursing staff, your loved ones, or your support friends.  

How to communicate? There is no one correct way to communicate. If you are uncomfortable speaking, bring someone along who is not. Write your questions down, or have someone do this for you ... or print out the list that follows and underline what you want to ask. 

The goal:  Shared decision making. Understanding your options and agreeing on a plan.  

Also see Preparing for Doctor Visits - A Checklist

 

Brochures and forms you can print
Checklist for Doctor Visits & Resources  PAL
Printable Treatment Appointment Diary  PAL
Preparing for Doctor Visits  PDF 
Is a clinical trial  appropriate for me?  PDF
Treatment History Diary  PDF
Spreadsheet: Treatment History Calculator   Excel version 2000 | Excel version 5.0

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General Questions

How often should I schedule visits?  
Also see Monitoring Indolent Lymphoma
What prescriptions do I need & how should they be taken and stored?
What is the treatment likely to cost?
Prior to treatment or tests: Ask the staff to verify that your doctors, the healthcare facility , and the type of treatment or test you are receiving are all covered in your insurance plan, and check if the tests and treatments require pre-authorization.
Can you refer me to a social worker who specializes in helping with finances and insurance matters?
What is the best way and time to communicate with you about my concerns (phone? fax? email?)
What materials or resources can you provide to help me to become informed about the disease?
What resources are available to me to help me cope with the anxiety I feel?
What other resources are available to me: nutrition? psychosocial? sexual? 
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Treatment Questions

Initial Consult or Treatment Consults

Treatment, and initial, consults should not be rushed.  Ask your doctor to schedule a time that allows for a thorough discussion of all appropriate options. Bring your written questions to this consult, and provide a copy for your doctor.

What is my diagnosis? And can you please provide me a copy of the pathology report.
How widespread is the disease? 
Does the disease require prompt treatment and why?
Can the disease be cured?
What are the symptoms of the disease, and which indicate a need for treatment?
What are my treatment choices?  What are the pros and cons of each?
Do you offer radioimmunotherapy as a treatment option?
Are new treatments under study? 
Would a clinical trial be appropriate for me? PDF
Also see Questions to ask the research team  ASCO.org
Which treatment do you recommend? Why?

Sometimes the rationale is important for the patient to understand, particularly when there is a difference of opinion among experts about the best approach to take.
What is the goal of this treatment? Cure? Management?
What are the chances that the treatment will be successful?
How long will treatment last? 
How easy is it to administer, and will it disrupt my normal life?
How durable is the response likely to be?
Does it offer a chance for cure?
Does this treatment limit the use of treatments I may need later on?
What toxicity and/or risks are associated with it?
Will I be able to work during treatment?
Is this a good time to consider harvesting of stem cells?  Before or after this treatment?
What tests will be used to measure or gauge response to treatment?
What signs will indicate that the therapy is starting to work or that it is not working?
NOTE: Prior to treatment, verify that your doctors, the healthcare facility , and treatments you will receive are all covered by your insurance plan.

Side Effects of Treatment Questions

What side effects should I expect?  And what side effects should I report to you?
Concerning any preexisting conditions:  How will you adjust treatment and monitor me given these circumstances.
What signs or changes should I report immediately?
How can I best contact you when this happens?
How will I feel during therapy, and will it affect my normal activities?
What can I do to minimize risks during therapy?
Will you prescribe medications to minimize side effects and risks?  Neupogen? Anti-nausea? etc.
What side effects may I experience that are not dangerous?
What foods, supplements, procedures, or medications should I avoid during treatment?
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Questions About Tests

What tests will you order? What do they measure?
Please provide copies of these tests.
Ask the staff to verify that your doctors, the healthcare facility , and the tests you will receive are all covered in your insurance plan, and check if the tests require pre-authorization.
How often should I receive these tests?
What changes or symptoms may indicate the need for tests?
What alternatives are there to CT scans for monitoring disease?
When is a bone marrow biopsy indicated?  And what steps can you take to minimize discomfort and anxiety associated with this test?
What test results indicate a need to initiate or change treatment?
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Disclaimer:  The information presented on Lymphomation.org is not intended to be a substitute for 
professional medical advice or to replace your relationship with a physician.
For all medical concerns,  you should always consult your doctor. 
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