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TOPICS
Signs of Stress
| Suggestions for Relieving Stress |
Resources
| Denial and Being a Caregiver
TOPIC
SEARCH: PubMed
TIPS - What can I do to help as a caregiver?
Andy
on WebMagic writes:
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The main help we've gotten from people has been
food.
A dinner that is easy to stick in the microwave or oven can
really help at
the end of a long day or just when you are really tired.
Ask about any dietary restrictions they have given him due to
low counts.
Things that are completely cooked (no salads) are likely to be
good.
A help we have given someone else is helping them with a
Caringbridge site
so that other people know what is going on. See
www.caringbridge.org
for how to do it.
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I agree that asking what they need is good.
But I would have ready some specific suggestions
(such as those above,
cleaning, shopping). A completely broad question is too hard.
It puts the burden on me to figure out something for them.
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Also, if you are nearby just letting them know
that you are available 24/7 in an emergency or when they
need an errand is good. We'll always be grateful to the
friend who drove my wife to the ER to meet me there. That way we
only had one car the next day when they released me and I was
too drugged up to drive. Also, she didn't have to drive while
worried.
Karl Writes:
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You might inquire if he wants someone to come
along when he receives treatments and for follow up consults -
to take him there but also to take notes, make sure all his
questions are answered ... or make mention of side effects he
might forget to ask about.
I think having a trusted caregiver participate in the consults
(in a low key way - listening mostly) can be very helpful and it
tends to improve the quality of the consult according to one
report by Consumers guide.
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Note: Studies show that an estimated 46 to
59 percent of caregivers are clinically depressed.
so it's important that the caregiver takes time to care for his or
her own needs as well.
Caregiver
stress can be compounded by the stress of the loved one being cared
for: the stress felt by one partner (and how that affects
behavior) adding to the stress felt by the other. This
circumstance can lead to a cycle of escalating stress contributing to
degraded quality of life, health consequences, and poor decision
making.
The caregiver can become
overwhelmed by increased responsibilities, such as the need to care
for children or elderly parents, pay bills, maintain the house -
tasks that the partner may no longer be able to do because of the
condition or the treatments.
The caregiver might focus on the
needs of the patient and ignore their own health concerns.
Here we provide some background on
caregiver and patient stress, and resources that may help to relieve
it and improve quality of life.
Webcasts, Recent News & Outside
Resources:
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NCI Caring for the Caregiver: Support for Cancer Caregivers
Cancer.gov
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PDF
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The researchers urge more health care interventions aimed
at emotional distress for
both patients and caregivers. At the same time, caregivers
should recognize they too
are emotionally affected by this illness and seek appropriate
support. Patients also
can play a role by encouraging their spouse to be actively
involved in their care.
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Signs of Stress and Depression
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Anger, anxiousness, or anxiety, and denial of same
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Feelings that are persistent,
which diminish your
quality of life and ability to function:
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Something bad is going to happen, or
feeling empty |
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Guilt, sadness, worthlessness, and/or helplessness/or pessimism
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Fear of losing control
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Decrease in sociability
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Poor eating habits - overeating or appetite loss
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Physical symptoms that are persistent, which diminish
your quality of life and ability to function:
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fatigue and exhaustion
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aches or pains, headaches, cramps,
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digestive problems that do not ease even with treatment
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Postponing or missing medical appointments
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Loss of interest in hobbies and activities that
once interested you (including sex)
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Nervousness and restlessness - tense
feelings, trembling and shaking
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Sleep problems (insomnia, early-morning wakefulness, or excessive sleeping)
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Thinking or problem solving deficits -
inability to organize or prioritize
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Thoughts of suicide or suicide attempts
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Suggestions for Relieving Stress:
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Gently invite the patient or caregiver to talk
about his or
her fears and concerns.
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Avoid forcing a discussion about feelings and stress.
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Listen carefully without judging
the other’s feelings, or
your own.
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Decide together what specific things you can do to be
supportive of each other.
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For severe anxiety,
reasoning might not be helpful.
Instead, talk with your doctors about the symptoms and problems
you notice.
Call the doctor if you
or your partner is having trouble breathing, is sweating, or feeling very restless
or showing signs of profound exhaustion.
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Tips to help reduce stress:
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Let yourself be alone for a short time
to clear your head
- a change of scenery—even a brief walk can make a difference.
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Exercise has many benefits — t promotes better sleep, reduces tension and depression, lifts spirits, and increases energy. Think of ways you can fit exercise into your daily routine.
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Go to a movie or have lunch with a friend.
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Let others take part in the work of care giving.
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Make list of tasks and put them in order of
importance. This can reduce feelings of being
overwhelmed and aid in helping others to help you.
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Talking about feelings that you or family members may be
having. |
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Try to accept feelings of sadness and frustrated as being
normal. |
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Avoid blaming yourself and others when you feel anxious
and afraid. |
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Try to identify the cause of the stress
(usually a thought
or opinion) and talk about it. |
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Try to learn about the disease and the treatment
options. Uncertainty
about the unknown contributes to fear.
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Seek counseling and support groups. See
Support
Groups |
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Use prayer, meditation, or other types of spiritual
support. |
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Exercise to promote better sleep,
reduces tension and depression, and
increase energy. Try to fit exercise into your daily routine. See
Exercise
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Try relaxation exercises or activities:
yoga, take warm
baths; read a book; listen to music; see a movie with a friend ...
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Talk with your doctor about the possible use of medicine
for anxiety. See
Anxiety
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Resources on caregiver stress:
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New: NCI Caring for the
Caregiver: Support for Cancer Caregivers
Cancer.gov
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PDF
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:
med.nyu.edu
This is "a preliminary screening test for depressive symptoms
that does not replace
in any way a formal psychiatric evaluation."
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Caring for the Patient with Cancer at Home: A Guide for
Patients and Families
ACS.org
Caregivers Often Neglect Their Mental Health
ACS.org
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Chronic illness interjects
complications into marriage
about.com
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Cancer effects entire family
plwc.org
"Cancer doesn't happen to just one person. Cancer happens to couples,
families, and friends. The complex emotions and lifestyle changes that
follow a cancer diagnosis can be almost as overwhelming for family
members and friends as they are for the person with cancer. Cancer can
change the way you relate to your family and friends, and the way they
relate to you."
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Anxiety resource page - PAL
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Antidepressant information -
PAL
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Counseling resources -
PAL
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Meditation resources -
PAL
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Support Groups PAL
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This is an excellent radio broadcast on the impact of
terminal illness on a marriage and family-- its a tough listen
but very well done
NPR.org
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Patient Denial & Being a Caregiver
The question that follows
about a friends possible denial prompted interesting replies from
caregivers and patients in our support groups. You can review
the replies by clicking links below.
Lymphoma Support Question: Patient denial & being a caregiver
I have a close friend who was recently diagnosed with b
cell lymphoma. She is obviously shocked but determined to go
through treatment and get better. Are there cures for this
disease or is it just placed in remission or is treatment used to
prolong lives? Hers is the indolent variety as far as I know.
She has had it for a while and it is slow growing, so far in her chest
and abdomen and have spread to her lower lumbar region of her spine.
In addition, she says she doesn't want to know what kind of cancer she
has, she doesn't want to know what kind of chemo they are going to
administer and she doesn't want to talk about it or focus on it at
all. Is this normal? I want to support her but
it seems
like she is denying what is happening while trying to project a
"I'm going to beat it" attitude. What should I do for
her?
Caregiver view - Daisy
| Patient view - Ronnie | Caregiver view - Hoda
| Caregiver view - MaryK
Patient view - Liz | Caregiver view - Karl
| Patient view - Betty | Patient view - Becky
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