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Treatment support

  

Support or Side Effects or Chemotherapy > Treatment Support

Last update: 04/04/2008

Chemotherapy and radiotherapy are often necessary and effective cancer treatments. However, each of these therapies can result in side effects because of damage to normal cells. The experience of cancer treatment varies. Many patients experience little discomfort and are able to continue work and family activities with little disruption. ... 

... For others the experience of treatment may involve high doses of chemotherapy or radiation which will require close monitoring and extensive after care. Additionally, the following factors can influence the treatment experience and the outcomes: your age, health status, the agents or dosing received, and the unique sensitivities you may or may not have to treatments.

Sometimes the anxiety about treatment can disrupt the patients' lives more than the therapy, and can make recovering from cancer more difficult. It's important to be positive about the treatment you have chosen and to learn what you can do to manage or prevent side effects so that you will have the best chance to have a great outcome.  

Related Resources 
Chemo and You: a guide to self-help  cancer.gov  pdf 
General Management Guidelines for Chemotherapy  www.dent.ohio-state.edu pdf 
New: NCI Guidance: Chemotherapy and You  Cancer.gov | PDF
New: NCI Guidance: Radiotherapy and You  Cancer.gov | PDF
New: NCI Radiation Therapy Fact Sheet Series  Cancer.gov
Patient Guidance: Tips for CHOP+R Treatment
The Nurses Guide to Prescription Drugs - starting with A  healthdigest.org
Understanding Drug Therapy and Managing Side Effects  leukemia-lymphoma.org  pdf

Questions for Your Doctor 
 

Suggestion by Mary Hanson (Cyberfamily)

Please provide readable information about each of the chemo drugs I will be getting. 

What symptoms or side effects are expected, and which require:

Immediate attention? 

A call the next day?

How can I contact you?

If drugs to control nausea will be needed, 
please provide me with a prescription several days prior to the first chemo treatment. 
 
Prior approval may be required by their insurance company. Delays - 
and unnecessary suffering - can be avoided with sufficient advance notice.

Avoiding Trouble: General Guidance

Preparations - getting ready for treatment: 
Take care of dental problems and chronic infections. See below
Let neighbors, family, and friends help with preparations and tasks; try to relax and store energy.
Notify employees, family, and friends that you will need to be careful to avoid infections.
Make preparations to minimize the responsibilities you will have when treatment starts.
Avoid infections - The main point to remember is to wash your hands often, and to avoid places and circumstances that increase your exposures to germs, molds, and viruses. 
Also see Avoiding Infections for details and tips from patients.
Avoid Dehydration: Drink plenty of water daily to keep tissues hydrated, reduce constipation, and to help remove toxins from your bladder and kidneys.

"Dehydration occurs when not enough free water is taken in by the body, and as a result the blood gets more and more concentrated. This makes it more difficult to fight off infections; it makes it more difficult to eliminate toxins by the kidneys; and it decreases the fluidity of the blood, so it doesn't flow as freely and favors clot formation. 

Caffeine dehydrates. Caffeine is a diuretic, which means it makes you pee out more than you drank in. For each cup of coffee, tea, cola drink, or cocoa, take an extra cup of water. Likewise be aware of chocolate also requiring extra water.

Alcohol dehydrates as well. It is also a liver toxin, so shouldn't be used during chemotherapy as well."


source: www.leiomyosarcoma.info/diet.htm 

Also see: Importance of Hydration plwc.org
Avoid excessive sun exposure - especially if treatment includes vincristine
Food Preparation Tips:
On treatment days, eat a small meal two hours before treatment and take a snack with you to treatment. Also try to have some of the following food and drink, which require little or no preparation, available throughout the day: broth-based soups, canned fruit, crackers, fruit juice . . .
Prepare meals ahead of time, fixing quality small portions, such as soups that  include quality protein, grains, and vegetables. You can make larger batches and store smaller ready-to-use quantities in the refrigerator or freezer for later use.
Cooked foods are safer. Be sure to thoroughly wash vegetables and fruits (see above)
Smoothies can help 

Also see:  Keeping Bacteria from Cross Contaminating Your Food  Webcast 

Main points: Separate, don't cross contaminate!

Sources of cross contamination:  

Raw foods, food containers, cutting boards, plates, your hands, dish towels, counter tops, and sponges.

Wash your hands with warm soapy water after handling any kind of raw food.

Put raw food like chicken or meat in separate plastic bags,
wrap them separately so that the juices from the raw food don't contaminate
the fresh food that you're buying.

Use separate cutting boards for fresh produce and raw meat.

Use separate dish towels when handling raw meat.

Always boil marinades before using with cooked foods.

Use clean utensils and plates for cooked food.

Nutrition and Food Safety Tips
Also see Diet recommendation for Immunosuppressed for details about safe and unsafe foods.
During and after chemotherapy your body will need to repair.  Foods that are rich in protein supply your body with amino acids, which help to build, repair, and maintain cells and muscle tissue, to heal wounds, and to support the immune system.
Nutrition and Cancer THREE STAGES:  Nutrition During Treatment | Specific Chemotherapy Agents 
and Nutrition | Nutritional Suggestions for Immunotherapies |  Radiation Treatment and Nutrition 
| Herbs and Surgery Warnings   cancerNutrition.com
Building Up diet  CancerBACUP 
Eating problems  CancerBACUP
"Eating Well Through Cancer" by Holly Clegg  Amazon.com
Focuses on cancer and nutrition with a mainstream approach. 
Recipes were selected to ease symptoms while undergoing treatment and to maintain 
a healthier lifestyle. (We have no affiliations with the authors
A healthy guide to eating CancerBACUP 
Eat a well-balanced diet. Be sure to get adequate nutrients by eating a variety of vegetables and good sources of protein to assist immune function. Nutrients such as Vitamin A, zinc, vitamin C, Zinc, etc. assist your body in fighting infection.
Antioxidants during chemotherapy?
TOPIC SEARCH: PubMed Antioxidants with chemotherapy?  
Focus on the positive! You have chosen the treatment because it's in your best interest. Focus on the positive aspects of the therapy. See 10 Commandments for Cancer Survivals.
Avoid taking supplements without consulting with your oncologist.  

Vitamin D  and Calcium: these supplements can increase the risk of hypercalcemia - a metabolic imbalance resulting from too much calcium in the blood. 

Hypercalcemia is associated with lymphomas and can also be a side effect of chemotherapy.

"Some patients with sarcoidosis, tuberculosis, or lymphoma become hypercalcemic in response to any increase in vitamin D nutrition (122, 134, 135). For these persons, it may be prudent to avoid any dietary or environmental sources of vitamin D." www.ajcn. org/cgi/content/ full/69/5/ 842
Avoid hot baths - See Hand/Foot Syndrome  | And to avoid risk of infection:  cancer.gov

HFS is a skin reaction that appears on the palms of the hands and/or the soles of the feet as a result of certain chemotherapy agents  

Comment:  When you think about it, the doses of chemotherapy agents are carefully calculated to achieve blood levels within the therapeutic window (to be effective with acceptable toxicity).  It may be that a hot bath will raise the temperature of blood in your skin and extremities, which could increase drug accumulations in those areas and reduce blood flow to other areas. When you self-prescribe and experiment with the treatment script with the goal of optimizing therapy it's possible to do more harm than good.   
Keep physically active; discuss your limits with your doctor. 
Exercise. Studies show that moderate (not strenuous) exercise during treatment can 
have many benefits.  Please consult your doctor for guidance on activities appropriate to your
performance level and special risks you may have.
Exercise to Stay Active  cancer.org/docroot 

Find out how much activity is healthy during treatment and create an exercise program that's right for you.
"It has been shown that exercise such as riding a bike or walking can maintain a patient's strength and endurance while undergoing therapy."  rch.unimelb.edu

Benefits may include: 
" Shorter duration of low neutrophil and platelet counts 
   Decreased risk of upper respiratory tract infections (urti's)
   Decreased pain severity | Decreased anxiety and depression | Improved mood"
Prepare a journal of your activities, body functions, and symptoms and bring it with you to your doctor's appointment. Write down your questions. Set goals.
Rest - Try to get adequate sleep and let others help you with chores and responsibilities.
Talk to other patients; join a support group.
Dave (nhl-follic support list) writes: 

Get a binder, to keep your: questions, answers, lab results, receipts,
important information; take it to all appointments.

Always take your nausea meds as early as prescribed, if you have
optional nausea pills, err on the overly cautious side.

Chemo day, take a little backpack with: book, non-smelly-bland munchies,
water or drinks, binder, and a copy of your chemo dosages (check the
bags). The first day is long, nervous and boring.  You should have a
designated driver.

Never eat your favorite foods when nausea is probable.

If you get tired, take a nap, then take a walk.
1 hour nap = 1/2 hour walk.
Keep active, avoid the temptation to cocoon.

If ANYTHING seems to change, ask your onc.  (Mine got tired of saying
"it goes with the territory", but I didn't need the extra stress caused
by worrying over stuff.)

Many people go through CHOP+R with very minor bad side effects, don't
believe the TV sensationalized stereotypes.

If you have hair 10" or longer, cut it and donate to kids with cancer at
www.locksoflove.org
You are going to lose it, and it makes a good story when you don't want
to tell somebody about the chemo.

Keep a sense of humor.

Dave (originally posted on nhl-follic support list)

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Fight nausea: Some cancer treatments can cause nausea. 

Also see Nausea in the Side Effects section.
Ask your doctor to provide a prescription several days prior to the first chemo treatment. 
 
Prior approval may be required by their insurance company. Delays - 
and unnecessary suffering - can be avoided with sufficient advance notice.
Ask your doctor about medication that can dramatically control nausea, such as Zofran, Kytril, and Emend.
Avoid foods that are high in fat, which tend to remain in the stomach longer than 
other foods and may contribute to nausea.
Avoid odors that offend you.
Breath through your mouth when feeling nauseous. 
Try smaller, more-frequent meals to help to minimize nausea. 
Complementary practices that may control nausea and vomiting:
Acupuncture and Ginger  
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Fight constipation  

Also see Bowel & Bladder in the Side Effects section.
Ask your doctor about laxatives and stool softeners.
Drink plenty of liquids
Eat foods with fiber content, such as celery and cooked whole grains.
Keep active.
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Oral Health - especially important during and prior to chemotherapy

Important: See your dentist as early as possible before chemotherapy begins. If you have already started chemotherapy and didn’t go to a dentist, see one as soon as possible, and notify him or her that you are receiving treatment. 
New: See Oral and Dental Management Prior to Cancer Therapy cancer.gov
Avoid foods that are: 
Sharp, crunchy, which can scrape or cut your mouth (hard nuts, brittle candy)
Hot, spicy, or high in acid, like citrus fruits and juices, which can irritate your mouth
Sugary and can cause cavities
Choose foods that are:
nutritious,  easy to chew and swallow
soft and moist (soups, cooked cereals, mashed potatoes, and scrambled eggs)
If you have trouble swallowing, soften your food with gravy, sauces, broth, yogurt, or other liquids.
Chew slowly, take small bites, sip liquids with meals.
Also avoid toothpicks, tobacco products, alcoholic drinks.
When your mouth hurts, call or fax your doctor or nurse.
Oral hygiene: How to clean your mouth, tongue, and gums.
NEW:  Prevention of oral mucositis - evidence-based best practices oralcancerfoundation.org  pdf 
Use extra-soft toothbrush after every meal and at bedtime. Soften brush in warm water.
Use a fluoride toothpaste.
Avoid  mouthwashes that contain  alcohol.
Gently floss your teeth daily. Avoid  areas that are bleeding or sore. If blood counts are low check with doctor or nurse before flossing.
Rinse several times daily with solution of
1/4 teaspoon baking soda and 
1/8 teaspoon salt in one cup of warm water. 
Follow with a plain water rinse.
Suck on ice cubes to relieve sores - 
be sure that the water is pure (boil if from a well).
Discuss with your doctor or dentist about your dentures that don't fit.
Adapted from:  Chemotherapy and Your Mouth - NIDCR
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When to call your doctor or nurse - general guidelines 

We have moved this information to an new page

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- Resources and Research 

Chemo
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Related Resources
Managing side effects of treatment, Paula Anastasia, RN, MN, AOCN Oncology Nurse Educator  Transcript or WebObtaining an Accurate DiagnosiscastWebCast-help 
Chemotherapy and You: A Guide to Self-Help During Cancer Treatment  
NCI.gov
Coping with Side Effects  Cancer.gov
Nutritional and Dietary Management of Cancer Patients  
Stacy Steinberg
, M.S., R.D., CNSD 
Dealing with ill-effects of Chemo  CancerLynx
International Journal of Experimental and Clinical Chemotherapy  karger.com
Life after High Dose Treatment and Stem Cell Support  CancerBACUP
Suggestions for conserving energy  CancerLynx 
Understanding Chemotherapy  CancerBACUP booklet series
Understanding Adriamycin Chemotherapy Western General Hospital, Edinburgh
 
Disclaimer:  The information presented on Lymphomation.org is not intended to be a substitute for 
professional medical advice or to replace your relationship with a physician.
For all medical concerns,  you should always consult your doctor. 
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