American Consortium for Familial Hematologic Malignancies (NACFHM)
is comprised of a group of investigators located throughout the
United States and Canada which seeks to understand how the
genetic material that each person inherits from his/her parents
could contribute to developing a bone marrow cancer.
Our website is
www.bonemarrowcancersupport.webs.com but over time, we
may move it... working on a different interface.
In this study,
the NACFHM investigators will follow over time individuals
within families who have inherited bone marrow cancers. The
NACFHM will describe any medical problems commonly found in
these individuals/families. For example, some of these
individuals have abnormal blood clotting.
The NACFHM will
also look for the other changes that lead to the development of
the blood cancer. The NACFHM will also try to understand why
some members of a family develop cancer, whereas others do not.
The NACFHM will
study the psychological impact of having a predisposition to
developing a bone marrow malignancy, and finally, the NACFHM
will try to identify families with a familial predisposition in
which only one member of a family has developed a malignancy,
and therefore, may not be suspected of having this condition.
looking for patient advocates who would be interested in
joining or forming a new advocacy group focused on inherited
bone marrow-derived cancers.
of the advocacy group would be to advise us on our NIH
proposal to form a consortium of investigators throughout US
and Canada who will study inherited bone marrow cancers. The
grant is due in early November. If the grant is funded, the
advocacy group would work with us to recruit patients.