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Patients Against Lymphoma

 

Lymphomation.org > About Us > Approach

Last update: 05/02/2013

Goals and objectives for content on lymphomation.org

Meeting the support and information needs
of patients and caregivers
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To provide evidence-based information - based on patient and caregiver questions
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To support well-informed consent

Helping patients to become informed partners with their
physicians in their care.
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To provide links to *all* credible support services and information, not just our own. 
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To organize topics so they are easy to find
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To write concisely, limiting technical language

Provide the meaning of important technical words in the text to promote learning.

Use images and analogies to help explain complex concepts.

... without talking "down" to patients.
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To provide links to supporting studies and sources

... so that you can have confidence about the accuracy and validity of the information, and feel confident about sharing it with your treating physician.
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To advance the informed and routine consideration of clinical trials
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To provide links to clinical trials when reporting outcomes for an investigational agent
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To help the community distinguish between strong and weak evidence for clinical interventions.

Addressing myths and misinformation, respectfully
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To post clinical study reports and describe the limitations of the study methods as time allows.

Do the methods support the author's conclusions?

Research Advocacy: 

We advocate for clinical research that is patient-centered - focused on answering critical research questions while having the potential to also meet the clinical needs of the study participants:

 Achieving the dual requirements of being
Good science AND Good medicine!

How to Help

Patient-centered = science and evidence-based

Independent of health industry funding

Our Focus is on Clinical Trials
 

 
Disclaimer:  The information on Lymphomation.org is not intended to be a substitute for 
professional medical advice or to replace your relationship with a physician.
For all medical concerns,  you should always consult your doctor. 
Patients Against Lymphoma, Copyright © 2004,  All Rights Reserved.