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Patients Against Lymphoma

 

Support > Tools and Tips

Last update: 02/07/2012

TOPICS
Tools and Tips | About Lymphomas | For Researchers and Docs | About Us

TOOLS AND TIPS

Printable Guides & Tools

Updated

Description

Blood draws: 
tips for
minimizing pain PDF
 
For anyone to view, print and distribute
 

Brochure: A patient's guide to minimizing discomfort from IV and injections   Updated August 2007
Lab Tracker 
Excel
 
  For patients and caregivers
 
Spreadsheet: 
Lets you record, compare, and chart labs results.  Requires Microsoft Excel. 
 
Safety:
Keeping Your Family Safe From Medical Errors PDF

 

For anyone to view, print and distribute

Brochure: A patient's guide to minimizing risk from medical errors. Updated August 2007

Safety:
Medication
Checklist PDF

2/2012

Helps  you to organize your medications - includes tips for avoiding medication errors - print and copy as desired.  Create a binder to store them if more than one is needed.
Peripheral Blood Reference Range Chart (CBC) PDF
  For patients and caregivers
 

Chart: A two-page chart to help you understand the meaning of blood count results. Includes age- and gender-specific ranges of normal. 
Preparing for
Doctor Visits PDF 

 

For patients and caregivers
 

Brochure:
What to bring, and how to prepare for doctor visits. How to ask for and receive help from care managers and obtain special services.  Version update Aug  30, 2005
Concise Bring List ... open and print  PDF
  Helping you to optimize your medical consults.
Questions for Doctors 
A Checklist  PDF
 

For patients and caregivers
 

Printable Checklist: Guidance on communicating with your doctor, and a checklist of questions to ask. Categories: General, Treatment-related, Side Effect-Related, and Test-Related.

Health Insurance
Correspondence Log PDF
  For anyone to view, print and distribute  

Printable form: Use to help prepare for and log correspondences with health care providers and insurance carriers. Provides tips for filing bills and EOBs.

CLINICAL TRIAL SURVEY 
For Oncologists Treating Lymphoma Patients
PDF
 
For patients and caregivers to print out and give to their doctors
 

Purpose: To identify obstacles to enrolling patients in clinical trials.
Clinical Trials - Questions that can only be answered by trials PDF
  For patients, caregivers and investigators
 
Clinical Trials - when to Consider?  PDF

 

  Based on 7 clinical circumstances.
Clinical Trials - The Urgent Need to Increase Participation PDF
  For public and drug sponsors and investigators
 

Commentary: There is an increasing number of investigational agents for lymphomas and a limited patient pool, approximately 5% of available patients. Thus, identifying and addressing obstacles to study enrollment is vital to making progress.
Clinical Trials - Locating for Lymphoma PDF
  For patients, caregivers, and healthcare providers
 

Brochure: Simple 1, 2, 3 steps to locate clinical trials.  We encourage you to print it out and take to your next consult.
Red Flags and 
Free Speech PDF
  For patients and caregivers
 

Commentary: on how to recognize strong, plausible, and bogus information about cancer treatments.
Is the
medical claim
reputable?  PDF
  Checklist for judging the credibility of online information
Testimonials 
- problems with
PDF
  For patients and caregivers
 
Printable Form:
Provides information about why testimonials cannot be considered evidence. Updated 09/15/2006.
Treatment 
Appointment Diary 
Web
  For patients and caregivers
 

Printable web form:  Helps keep track of appointments and questions
Preparing for Treatment   PDF
  For patients and caregivers
 

Printable Checklist: Guidance on how to prepare and get through treatment.
Symptoms
checklist 
PDF
  For patients and caregivers

Printable Checklist: To guide when reporting new symptoms by phone, in consults, and to fax symptoms to a number provided by the doctor. 

Treatment
History 
Form PDF
  For patients and caregivers
 
Printable Form:
Records treatment history: types, duration, months to next treatment, and months to next treatment of kind. Helps you & your doctor to see trends. Updated 11/27/2003.
Treatment History Calculator 
 Excel version 2000  
Excel version 5.0
To Download:
Right-click
link on left,
Select Save Target As
For patients and caregivers
 
Spreadsheet:
Records & calculates treatment history: types, duration, months to next treatment, and months to next treatment of kind. Helps you & your doctor to see trends. Updated 11/27/2003.  Also see Sample with Data Also see Treatment History Form above that does not require Excel.
Rituxan 
Checklist Web
  For patients and caregivers
 

Printable Checklist: What to expect, bring, reactions to be watchful for, etc. 
 Radioimmunotherapy -
When to Consider PDF
  For patients and caregivers
 
Printable Form:
Provides information about why testimonials cannot be considered evidence. Updated 09/15/2006.

ABOUT LYMPHOMAS
 
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Lymphoma Awareness PDF
  For anyone to view, print and distribute
 

Brochure: Q&A: What's lymphoma? What's cancer? Types? Incidence and mortality? Symptoms?  Treatments?  Incidence?  Famous people with?   Updated September 2007
Lymphoma 
simplified PDF
  For anyone to view, print and distribute

Brochure: Describes lymphoma in a comprehensive way, but using lay terminology.

What's 
Lymphoma? 
includes famous people diagnosed with the disease 
PDF
 
  For patients, caregivers and the general public
 
Brochure:
Includes symptoms, areas of presentation, and statistics. Includes a list of celebrities and notables diagnosed with lymphoma. A good brochure to share with the general public to raise awareness.
What's 
Lymphoma? 
Illustrated PDF 
  For patients, caregivers and the general public
 
Brochure:
Includes symptoms, areas of presentation, and statistics. Includes illustrations of white blood cells, lymphocytes, and how a cancer begins.
When Should I 
Consider a Clinical Trial? PDF
  For patients and caregivers
 
Brochure:
Includes a checklist of questions to ask your doctor or the study investigator. Includes guidelines of when a study might be most appropriate. Includes step-by-step help on how to locate a clinical trial for lymphoma.

FOR RESEARCHERS, PHYSICIANS and Patients

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Harmonizing Research and Treatment Goals  Color PDF or B&W PDF   For Drug sponsors and clinical investigators
 

Presentation handouts
: Describes our perspectives on the design of clinical trials - specific to immune-based therapies
Increasing Participation
in Clinical Trials 
PDF
 
  For Drug sponsors, and clinical investigators
 
Brochure:
Patient perspectives on clinical trial design.  Draft: Added April 19, 2004
Locating Clinical Trials for Lymphoma
PDF
  For patients, caregivers, and healthcare providers
 

Brochure: Simple 1, 2, 3 steps to locate clinical trials.  We encourage you to print it out and take to your next consult.
Modernizing Cancer Research PDF
  For anyone to view, print and distribute

Brochure: Provides a schematic of the National Biospecimen Network; and the rational for why it's urgently needed.


Questions that Can Be Only Answered by Clinical Trials PDF
  For patients, caregivers, and healthcare providers
 

Brochure: Our goal is to show patients that participation is essential to progress - to answering questions we have today.
Optimizing 
Patient-Physician Consults PDF 
  For Healthcare providers
 
Brochure:
Patient perspectives on how doctors and staff can improve the consult experience for patients.

ABOUT US

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About Us - PDF
  For anyone to view, print and distribute
 

Brochure: Describes our mission, history, goals, programs, and emphasis. Lists our board members, volunteers, and scientific advisors. Updated August 30, 2007
About Us - Donate Vehicle - PDF
  For anyone to view, print and distribute
 

Brochure: As above, with information about how to donate a vehicle to support our mission. Updated August 30, 2007
We encourage visitors to print or download the items within. 
Also we will mail you the desired item on request.  Please provide a stamped and addressed envelope.

Patients Against Lymphoma
3774 Buckwampum Road, Riegelsville, PA 18077
 
Disclaimer:  The information on Lymphomation.org is not intended to be a substitute for 
professional medical advice or to replace your relationship with a physician.
For all medical concerns,  you should always consult your doctor. 
Patients Against Lymphoma, Copyright © 2004,  All Rights Reserved.