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Support > Tools and Tips

Last update: 01/01/2018

 

Tools and Decision Aids

Meds, Blood Draws, Labs

Doctor Visits

Preparation for doctor visits

About Lymphomas

Clinical Trials

Evaluating Evidence and Medical Claims

 For Research Advocates

About Us


 


Patient TOOLS AND TIPS

MEDICATIONS, BLOOD DRAWS, LABS

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About Blood Tests

Web

For patients and caregivers

Basics about blood tests: why they are done; different types

Blood draws *
 
PDF
For patients and caregivers
 
Ti
ps for minimizing pain.  A patient's guide to minimizing discomfort from IV and injections   Updated August 2007
Lab Tracker  *

To Download:
Right-click
link on left,
Select Save Target As


Excel

For patients and caregivers
 
Lets you record, compare, and chart labs results.  Requires Microsoft Excel version 10
Keeping Your Family Safe From Medical Errors *

 

PDF

For patients and caregivers

A patient's guide to minimizing risk from medical errors. Updated August 2007

Medication
Checklist *

 

PDF

For patients and caregivers

Helps  you to organize your medications - includes tips for avoiding medication errors. 

Medication and Consult Organizer  *

PDF

Print, then fill in.  Provide a copy for each physician to assist in your consults. Includes tips on how to avoid common medical errors
Peripheral Blood Reference Range Chart (CBC) *

PDF

For patients and caregivers
 

A two-page chart to help you understand the meaning of blood count results. Includes age- and gender-specific ranges of normal. 

DOCTOR VISITS

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Decision Aids

Preparing for
Doctor Visits  *

PDF

For patients and caregivers
 

What to bring, and how to prepare for doctor visits. How to ask for and receive help from care managers and obtain special services.  Version update Aug  30, 2005
Questions for Doctors, a checklist  *

PDF

Web

For patients and caregivers
 

Guidance on communicating with your doctor, and a checklist of questions to ask. Categories: General, Treatment-related, Side Effect-Related, and Test-Related.

Big Picture Questions*

PDF

Web

For patients and caregivers
 

Helps to understand which approaches are appropriate based on your type of lymphoma, clinical circumstances, and your personal preferences


Preparation and Tips

Preparing for Doctor Visits *
 

PDF

For patients and caregivers
 
General Guidance and Related Resources
Optimizing Doctor Visits *
 

PDF

For patients and caregivers

Being an active partner starts with trusting that our questions are valid they are!

Be concise, honest, respectful, and prepared
Health Insurance
Correspondence Log *

PDF

For anyone to view, print and distribute  

Use to help prepare for and log correspondences with health care providers and insurance carriers. Provides tips for filing bills and EOBs.

Treatment 
Appointment Diary *

Web

For patients and caregivers
 

Helps keep track of appointments and questions
TIPS: Preparing for Treatment, a checklist *

PDF

For patients and caregivers
 

Guidance on how to prepare and get through treatment.
 Symptoms reporting, a CONCISE one page checklist *
 

PDF

For patients and caregivers

To concise overview on reporting symptoms 

Symptoms reporting, a two page guide to help you report to your doctor *

PDF

For patients and caregivers

A more detailed guide to aid in reporting new symptoms by phone, in consults, and to fax symptoms

Treatment History  Form *

PDF

For patients and caregivers
 
Records treatment history: types, duration, months to next treatment, and months to next treatment of kind. Helps you & your doctor to see trends. Updated 11/27/2003.
Treatment-specific Information

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Rituxan 
Checklist *

Web

For patients and caregivers
 

What to expect, bring, reactions to be watchful for, etc. 
Radioimmunotherapy -
When to Consider *

PDF

For patients and caregivers
 
Provides information about why testimonials cannot be considered evidence. Updated 09/15/2006.


CLINICAL TRIALS

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CLINICAL TRIAL SURVEY 

Ask your  Oncologist to complete and mail in
PDF
For patients and caregivers to print out and give to their doctors
 

To identify obstacles to enrolling patients in clinical trials.
Clinical Trials - Questions that can only be answered by trials *

PDF

For patients, caregivers and investigators

Progress depends on the completion of studies that answer important clinical questions.
Clinical Trials - when to Consider *

PDF

Based on our unique clinical circumstances.

When trial participation can also make sense as a treatment decision. 

When Should I 
Consider a Clinical Trial? *

Questions to ask

PDF

For patients and caregivers
 
Includes a checklist of questions to ask your doctor or the study investigator. Includes guidelines of when a study might be most appropriate. Includes step-by-step help on how to locate a clinical trial for lymphoma.
Clinical Trials * Locating for Lymphoma

Find trials:
 
by Agent  
by Type of Lymphoma & Treatment Status  
Our Picks

For patients, caregivers, and healthcare providers
 

 


EVALUATING MEDICAL CLAIMS AND EVIDENCE

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Red Flags and Free Speech *

PDF

For patients and caregivers
 

How to recognize strong, plausible, and questionable information about cancer treatments.
Is the Medical Claim
Reputable? *

PDF

For patients and caregivers

Checklist for judging the credibility of online information

Testimonials 
- problems with *
 

PDF

For patients and caregivers
 
Provides information about why testimonials cannot be considered evidence. Updated 09/15/2006.


ABOUT LYMPHOMAS
 
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Lymphoma Awareness *

PDF

For anyone to view, print and distribute
 

Q&A: What's lymphoma? What's cancer? Types? Incidence and mortality? Symptoms?  Treatments?  Incidence?  Famous people with?   Updated September 2007
Lymphoma 
simplified *

PDF

For anyone to view, print and distribute

Describes lymphoma in a comprehensive way, but using lay terminology.

What's 
Lymphoma? *

How it arises from lymphocytes

PDF

For patients, caregivers and the general public
 
Includes symptoms, areas of presentation, and statistics. Includes illustrations of white blood cells, lymphocytes, and how a cancer begins.


RESEARCH ADVOCACY

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Harmonizing Research and Treatment Goals 

Color PDF

B&W PDF

For Drug sponsors and clinical investigators
 

Describes our perspectives on the design of clinical trials - specific to immune-based therapies
Increasing Participation
in Clinical Trials  


PDF

For Drug sponsors, and clinical investigators
 
Patient perspectives on clinical trial design.  Draft: Added April 19, 2004
Clinical Trials - The Urgent Need to Increase Participation

PDF

For public and drug sponsors and investigators
 

There is an increasing number of investigational agents for lymphomas and a limited patient pool, approximately 5% of available patients. Thus, identifying and addressing obstacles to study enrollment is vital to making progress.
Modernizing Cancer Research

PDF

For anyone to view, print and distribute

Provides a schematic of the National Biospecimen Network; and the rational for why it's urgently needed.

Strategies for Finding and Evaluating Medical Information   

PDF

Web

For patients, caregivers, and research advocates
 

Web: compiled resources

Questions that Can Be Only Answered by Clinical Trials

PDF

For patients, caregivers, research advocates, and healthcare providers
 

Brochure: Our goal is to show patients that participation is essential to progress - to answering questions we have today.
Presentation to Patient Representatives:
Keeping an Open Mind - Close Calls

PDF

For research advocates
Preparing for ODAC meetings - keeping an open mind
Interest, attitudes, and participation in clinical trials among lymphoma patients with online access

Web

For research advocates and clinical researchers

Our published study - ASCO 2009: 

 

Optimizing 
Patient-Physician Consults  

PDF

For Healthcare providers
 
Patient perspectives on how doctors and staff can improve the consult experience for patients.
We encourage visitors to print or download the items within. 
 
Disclaimer:  The information on Lymphomation.org is not intended to be a substitute for 
professional medical advice or to replace your relationship with a physician.
For all medical concerns,  you should always consult your doctor. 
Copyright 2004,  All Rights Reserved.