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Patients Against Lymphoma

 

Support > Tools and Tips

Last update: 09/04/2014

 

Tools and Decision Aids

Meds, Blood Draws, Labs

Doctor Visits

Preparation for doctor visits

About Lymphomas

Clinical Trials

Evaluating Evidence and Medical Claims

 For Research Advocates

About Us

 


Patient TOOLS AND TIPS

MEDICATIONS, BLOOD DRAWS, LABS

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About Blood Tests

Web

For patients and caregivers

Basics about blood tests: why they are done; different types

Blood draws
 
PDF
For patients and caregivers
 
Ti
ps for minimizing pain.  A patient's guide to minimizing discomfort from IV and injections   Updated August 2007
Lab Tracker   

To Download:
Right-click
link on left,
Select Save Target As


Excel

For patients and caregivers
 
Lets you record, compare, and chart labs results.  Requires Microsoft Excel. 
Keeping Your Family Safe From Medical Errors

 

PDF

For patients and caregivers

A patient's guide to minimizing risk from medical errors. Updated August 2007

Medication
Checklist

 

PDF

For patients and caregivers

Helps  you to organize your medications - includes tips for avoiding medication errors. 

Medication and Consult Organizer  (NEW)

PDF

Print, then fill in.  Provide a copy for each physician to assist in your consults. Includes tips on how to avoid common medical errors
Peripheral Blood Reference Range Chart (CBC) 

PDF

For patients and caregivers
 

A two-page chart to help you understand the meaning of blood count results. Includes age- and gender-specific ranges of normal. 

DOCTOR VISITS

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Decision Aids

Preparing for
Doctor Visits  

PDF

For patients and caregivers
 

What to bring, and how to prepare for doctor visits. How to ask for and receive help from care managers and obtain special services.  Version update Aug  30, 2005
Questions for Doctors, a checklist 

PDF

Web

For patients and caregivers
 

Guidance on communicating with your doctor, and a checklist of questions to ask. Categories: General, Treatment-related, Side Effect-Related, and Test-Related.

Medication and Consult Organizer 

PDF

Print, then fill in.  Provide a copy for each physician to assist in your consults. Includes tips on how to avoid common medical errors
7 Big Picture Questions

PDF

Web

For patients and caregivers
 

Helps to understand which approaches are appropriate based on your type of lymphoma, clinical circumstances, and personal preferences


Preparation and Tips

Concise Bring List

checklist of items to bring to doctor visits

PDF

For patients and caregivers
 
Helping you to optimize your medical consults.
Health Insurance
Correspondence Log

PDF

For anyone to view, print and distribute  

Use to help prepare for and log correspondences with health care providers and insurance carriers. Provides tips for filing bills and EOBs.

Treatment 
Appointment Diary 

Web

For patients and caregivers
 

Helps keep track of appointments and questions
Preparing for Treatment, a checklist

PDF

For patients and caregivers
 

Guidance on how to prepare and get through treatment.
Symptoms reporting,
checklist 
 

PDF

For patients and caregivers

To guide when reporting new symptoms by phone, in consults, and to fax symptoms to a number provided by the doctor. 

Treatment History  Form

PDF

For patients and caregivers
 
Records treatment history: types, duration, months to next treatment, and months to next treatment of kind. Helps you & your doctor to see trends. Updated 11/27/2003.
Treatment History Calculator 

To Download:
Right-click
link on left,
Select Save Target As

 

 Excel version 2000  
 
Excel version 5.0
 
For patients and caregivers
 
Records & calculates treatment history: types, duration, months to next treatment, and months to next treatment of kind.

Helps you & your doctor to see trends. Updated 11/27/2003. 

Also see Sample with Data Also see Treatment History Form above that does not require Excel.
Treatment-specific Information

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Rituxan 
Checklist

Web

For patients and caregivers
 

What to expect, bring, reactions to be watchful for, etc. 
Radioimmunotherapy -
When to Consider

PDF

For patients and caregivers
 
Provides information about why testimonials cannot be considered evidence. Updated 09/15/2006.


CLINICAL TRIALS

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CLINICAL TRIAL SURVEY 

Ask your  Oncologist to complete and mail in
PDF
For patients and caregivers to print out and give to their doctors
 

To identify obstacles to enrolling patients in clinical trials.
Clinical Trials - Questions that can only be answered by trials

PDF

For patients, caregivers and investigators

Progress depends on the completion of studies that answer important clinical questions.
Clinical Trials - when to Consider

based on clinical circumstances 

PDF

Based on 7 clinical circumstances.

WIN-WIN 

When trial participation can also make sense as a treatment decision. 

When Should I 
Consider a Clinical Trial?

Questions to ask

PDF

For patients and caregivers
 
Includes a checklist of questions to ask your doctor or the study investigator. Includes guidelines of when a study might be most appropriate. Includes step-by-step help on how to locate a clinical trial for lymphoma.
Clinical Trials - Locating for Lymphoma

PDF

For patients, caregivers, and healthcare providers
 

Simple 1, 2, 3 steps to locate clinical trials.  We encourage you to print it out and take to your next consult.


EVALUATING MEDICAL CLAIMS AND EVIDENCE

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Red Flags and Free Speech

PDF

For patients and caregivers
 

How to recognize strong, plausible, and questionable information about cancer treatments.
Is the Medical Claim
Reputable? 

a checklist

PDF

For patients and caregivers

Checklist for judging the credibility of online information

Strategies for Finding and Evaluating Medical Information   

PDF

For patients, caregivers, and research advocates
 
Testimonials 
- problems with
 

PDF

For patients and caregivers
 
Provides information about why testimonials cannot be considered evidence. Updated 09/15/2006.


ABOUT LYMPHOMAS
 
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Lymphoma Awareness

PDF

For anyone to view, print and distribute
 

Q&A: What's lymphoma? What's cancer? Types? Incidence and mortality? Symptoms?  Treatments?  Incidence?  Famous people with?   Updated September 2007
Lymphoma 
simplified

PDF

For anyone to view, print and distribute

Describes lymphoma in a comprehensive way, but using lay terminology.

What's 
Lymphoma? 

includes famous people diagnosed with the disease  


PDF

For patients, caregivers and the general public
 
Includes symptoms, areas of presentation, and statistics. Includes a list of celebrities and notables diagnosed with lymphoma. A good brochure to share with the general public to raise awareness.
What's 
Lymphoma? 
Illustrated  

PDF

For patients, caregivers and the general public
 
Includes symptoms, areas of presentation, and statistics. Includes illustrations of white blood cells, lymphocytes, and how a cancer begins.


RESEARCH ADVOCACY

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Harmonizing Research and Treatment Goals 

Color PDF

B&W PDF

For Drug sponsors and clinical investigators
 

Describes our perspectives on the design of clinical trials - specific to immune-based therapies
Increasing Participation
in Clinical Trials  


PDF

For Drug sponsors, and clinical investigators
 
Patient perspectives on clinical trial design.  Draft: Added April 19, 2004
Clinical Trials - The Urgent Need to Increase Participation

PDF

For public and drug sponsors and investigators
 

There is an increasing number of investigational agents for lymphomas and a limited patient pool, approximately 5% of available patients. Thus, identifying and addressing obstacles to study enrollment is vital to making progress.
Modernizing Cancer Research

PDF

For anyone to view, print and distribute

Provides a schematic of the National Biospecimen Network; and the rational for why it's urgently needed.

Strategies for Finding and Evaluating Medical Information   

PDF

Web

For patients, caregivers, and research advocates
 

Web: compiled resources

Questions that Can Be Only Answered by Clinical Trials

PDF

For patients, caregivers, research advocates, and healthcare providers
 

Brochure: Our goal is to show patients that participation is essential to progress - to answering questions we have today.
Presentation to Patient Representatives:
Keeping an Open Mind - Close Calls

PDF

For research advocates
Preparing for ODAC meetings - keeping an open mind
Interest, attitudes, and participation in clinical trials among lymphoma patients with online access

Web

For research advocates and clinical researchers

Our published study - ASCO 2009: 

 

Optimizing 
Patient-Physician Consults  

PDF

For Healthcare providers
 
Patient perspectives on how doctors and staff can improve the consult experience for patients.


ABOUT PAL

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About Us

PDF

Concise

For anyone to view, print and distribute
 

Describes our mission, history, goals, programs, and emphasis. Lists our board members, volunteers, and scientific advisors. Updated August 30, 2007
About Us -

with vehicle donation information

PDF

For anyone to view, print and distribute
 

As above, with information about how to donate a vehicle to support our mission. Updated August 30, 2007
Help PAL
We encourage visitors to print or download the items within. 
Also we will mail you the desired item on request. 

Please provide a stamped and addressed envelope.
Patients Against Lymphoma
3774 Buckwampum Road, Riegelsville, PA 18077
 
Disclaimer:  The information on Lymphomation.org is not intended to be a substitute for 
professional medical advice or to replace your relationship with a physician.
For all medical concerns,  you should always consult your doctor. 
Patients Against Lymphoma, Copyright 2004,  All Rights Reserved.