Patient TOOLS
AND TIPS
|
MEDICATIONS, BLOOD DRAWS, LABS
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About Blood Tests
|
Web |
For
patients and caregivers Basics about blood tests: why
they are done; different types |
Blood draws
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For
patients and caregivers
Tips for
minimizing pain. A patient's guide to minimizing discomfort from IV and
injections Updated August 2007 |
Lab Tracker
To Download:
Right-click
link on left,
Select Save Target As |
Excel |
For
patients and caregivers
Lets you record, compare, and
chart labs results. Requires Microsoft Excel. |
Keeping Your Family Safe From Medical Errors
|
PDF
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For
patients and caregivers A patient's guide to minimizing risk from medical errors.
Updated August 2007
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Medication
Checklist
|
PDF |
For
patients and caregivers Helps you to organize your
medications - includes tips for avoiding medication errors. |
Peripheral
Blood Reference Range Chart (CBC)
|
PDF |
For
patients and caregivers
A two-page chart to help you understand the meaning of blood
count results. Includes age- and gender-specific ranges of
normal. |
DOCTOR
VISITS
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|
Decision Aids |
Preparing for
Doctor Visits
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PDF
|
For
patients and caregivers
What to bring, and how to prepare for doctor visits. How to ask
for and receive help from care managers and obtain special
services. Version update Aug 30, 2005 |
Questions for Doctors,
a checklist
|
PDF
Web |
For
patients and caregivers
Guidance on communicating with your
doctor, and a checklist of questions to ask. Categories: General,
Treatment-related, Side Effect-Related, and Test-Related. |
7 Big Picture Questions
|
PDF
Web |
For
patients and caregivers
Helps to understand which approaches are appropriate based on your
type of lymphoma, clinical circumstances, and personal preferences |
|
Preparation and Tips |
Concise Bring List
checklist of items to bring to
doctor visits
|
PDF |
For
patients and caregivers
Helping
you to optimize your medical consults. |
Health Insurance
Correspondence Log
|
PDF
|
For
anyone to view, print and distribute
Use to help prepare for
and log correspondences with health care
providers and insurance carriers. Provides tips for filing bills
and EOBs.
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Treatment
Appointment Diary
|
Web |
For
patients and caregivers
Helps keep track of appointments and
questions |
Preparing for Treatment,
a
checklist
|
PDF |
For
patients and caregivers
Guidance on how to prepare and get
through treatment. |
Symptoms
reporting,
checklist
|
PDF |
For
patients and caregivers
To guide when reporting new symptoms by
phone, in consults, and to fax symptoms to a number provided by
the doctor. |
Treatment
History
Form
|
PDF |
For
patients and caregivers
Records treatment history: types, duration, months to
next treatment, and months to next treatment of kind. Helps you & your doctor to
see trends.
Updated 11/27/2003. |
Treatment
History Calculator
To Download:
Right-click
link on left,
Select Save Target As
|
|
For
patients and caregivers
Records & calculates treatment history: types, duration, months to
next treatment, and months to next treatment of kind.
Helps you & your doctor to
see trends.
Updated 11/27/2003.
Also see Sample
with Data Also see Treatment History Form above that does
not require Excel. |
Treatment-specific Information
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Rituxan
Checklist
|
Web |
For
patients and caregivers
What to expect, bring, reactions to be
watchful for, etc. |
Radioimmunotherapy -
When to Consider
|
PDF |
For
patients and caregivers
Provides information about why testimonials cannot be considered
evidence.
Updated 09/15/2006. |
CLINICAL
TRIALS
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CLINICAL TRIAL SURVEY
Ask your Oncologist to complete and mail in
|
|
For
patients and caregivers to print out and give to their doctors
To identify obstacles to enrolling patients in clinical
trials. |
Clinical Trials - Questions that can only
be answered by trials
|
PDF |
For
patients, caregivers and investigators
Progress depends on the completion of studies that answer
important clinical questions. |
Clinical Trials - when to
Consider
based on clinical circumstances
|
PDF |
Based on
7 clinical circumstances. WIN-WIN
When trial participation
can also make sense as a treatment decision. |
When
Should I
Consider a Clinical Trial?
Questions to ask
|
PDF |
For
patients and caregivers
Includes a checklist of questions to ask your doctor
or the study investigator.
Includes guidelines of when a study might be most appropriate.
Includes step-by-step help on how to locate a clinical trial for lymphoma. |
Clinical Trials - Locating for Lymphoma
|
PDF |
For
patients, caregivers, and healthcare providers
Simple 1, 2, 3 steps to locate clinical trials. We
encourage you to print it out and take to your next consult. |
EVALUATING
MEDICAL CLAIMS AND EVIDENCE
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Red
Flags and Free Speech
|
PDF |
For
patients and caregivers
How to recognize strong, plausible, and
questionable information about
cancer treatments. |
Is
the Medical Claim
Reputable?
a checklist
|
PDF |
For
patients and caregivers Checklist
for judging the credibility of online information |
Strategies
for Finding and Evaluating Medical Information
|
PDF |
For
patients, caregivers, and
research advocates
|
Testimonials
- problems with
|
PDF |
For
patients and caregivers
Provides information about why testimonials cannot be considered
evidence.
Updated 09/15/2006. |
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Lymphoma Awareness
|
PDF |
For
anyone to view, print and distribute
Q&A: What's lymphoma? What's cancer? Types? Incidence and
mortality? Symptoms? Treatments? Incidence?
Famous people with? Updated September 2007 |
Lymphoma
simplified
|
PDF |
For
anyone to view, print and distribute
Describes lymphoma in a comprehensive way, but using lay
terminology.
|
What's
Lymphoma?
includes famous people diagnosed with the disease
|
PDF |
For
patients, caregivers and the general public
Includes symptoms, areas of presentation, and statistics. Includes a list of celebrities and notables diagnosed with lymphoma.
A good brochure to share with the general public to raise
awareness. |
What's
Lymphoma?
Illustrated
|
PDF |
For
patients, caregivers and the general public
Includes symptoms, areas of presentation, and statistics. Includes
illustrations of white blood cells, lymphocytes, and how a
cancer begins. |
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Harmonizing Research
and Treatment Goals
|
Color PDF
B&W PDF |
For
Drug sponsors and clinical investigators
Describes our perspectives on the design of
clinical trials - specific to immune-based therapies |
Increasing
Participation
in Clinical Trials
|
PDF |
For
Drug sponsors, and clinical investigators
Patient perspectives on clinical trial design. Draft: Added
April 19, 2004 |
Clinical Trials - The Urgent Need to Increase Participation
|
PDF |
For
public and drug sponsors and investigators
There is an increasing number of investigational agents for lymphomas and a limited patient pool, approximately 5% of available patients. Thus, identifying and addressing obstacles to study enrollment is vital to making progress. |
Modernizing Cancer Research
|
PDF |
For
anyone to view, print and distribute
Provides a schematic of the National Biospecimen Network; and
the rational for why it's urgently needed.
|
Strategies
for Finding and Evaluating Medical Information
|
PDF
Web |
For
patients, caregivers, and
research advocates
Web: compiled resources |
Questions that Can Be Only Answered by Clinical Trials
|
PDF |
For
patients, caregivers,
research advocates,
and healthcare providers
Brochure:
Our goal is to show patients that participation is essential to
progress - to answering questions we have today. |
Presentation to Patient
Representatives:
Keeping an Open Mind - Close
Calls
|
PDF |
For research
advocates
Preparing for
ODAC meetings - keeping an open mind |
Interest, attitudes, and participation in clinical
trials among lymphoma patients with online access
|
Web |
For
research advocates and clinical researchers
Our published study - ASCO 2009:
|
Optimizing
Patient-Physician Consults
|
PDF |
For
Healthcare providers
Patient perspectives on how doctors and staff can improve the
consult experience for patients. |
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About Us
|
PDF |
For
anyone to view, print and distribute
Describes our mission, history, goals, programs, and emphasis.
Lists our board members, volunteers, and scientific advisors. Updated
August 30, 2007 |
About Us -
with vehicle donation information
|
PDF |
For
anyone to view, print and distribute
As above, with information about how to donate a vehicle to
support our mission. Updated
August 30, 2007 |
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We encourage visitors to print or
download the items within.
Also we will mail you
the desired item on request.
Please provide a stamped and addressed envelope.
Patients Against Lymphoma
3774 Buckwampum Road, Riegelsville, PA 18077 |
Tools and
Decision Aids