Patient Story posted to
WebMagic (with no
identifying information) with
links to other stories:
"It has been seven months
since my diagnosis and 4 months
since the transplant. I am
fortunate to be making an
incredibly smooth recovery after
my transplant. My counts are
great, almost completely normal
CBC and chemistry. My stamina
and energy is back and I can go
hiking again with my wife and my
dogs. I have not been
re-hospitalized since the day I
checked out. My magnesium has
stabilized and I no longer need
IV infusions. I just had my
hickman catheter removed this
week and it feels so good to not
have a big plastic squid hanging
out of my chest! And the best
news of all is that I just got
the results of the 3 month bone
marrow and my cells are 100% my
sisters, with no evidence of
cancer!
I did get some mild GVHD in the
form of a skin rash and some GI
upset at around the 2 month
mark. Steroid cream and
budesonide treated both
respectively and I did not need
to go on pred. I was kind of OK
with this. Supposedly people who
have mild graft vs host have a
lower chance of tumor
recurrence.
I still have a long way to go
before I feel like I am out of
the woods, but I am back to
feeling relatively healthy for
the first time in a long time.
Also, for those of you that
come across this thread looking
for info on this rare disease,
I would like to point you to
another thread on the cancer
survivors network that has a
bunch of great information. I
recently posted my complete
treatment plan over there.
http://csn.cancer.org/node/136135
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